https://forum.melanoma.org/user/ra23658/activity/ Activity feed for ra23658. Thu, 23 Apr 2026 02:58:33 -0400 https://buddypress.org/?v= en-US 30 hourly 2 dc438011832d573c9360153c9c3fd4b6 https://forum.melanoma.org/forums/topic/anyone-have-large-tumor-burden-that-is-now-ned/#post-275864 Mon, 25 Oct 2021 11:43:33 -0400 I am down to one small tumor in my lungs after having many in lungs, liver, pancreas and one in brain.  Started treatment about seven months ago Opdivo Yervoy 4 treatments every 4 weeks.  Now I’m on maintenance Opdivo every four weeks for how long I’m not sure.  I had initial tumor flare up and then they started shrinking.

]]> 1d6a29f65d819e61c12bbf1c34fae338 https://forum.melanoma.org/forums/topic/best-medicare-under-65-plan-for-melanoma-patients/ Fri, 30 Apr 2021 15:28:06 -0400 I’m about to end cobra and be eligible for Medicare after being on disability for two years.  I’m 45, unemployed pilot due to loss of medical because of stage 4 Melanoma. I wanted to see if there is anybody that has researched and found the best plan to be on while being treated for cancer. I’m currently on # 3 of 4 Opdivo/Yervoy combin…Read more

]]> 7e7f539b8f3173992fb661552b01422f https://forum.melanoma.org/forums/topic/iplimumab-nivolumb-after-unsuccessful-nivolumab/#post-274357 Sat, 13 Mar 2021 17:53:48 -0500 Thanks for the response. Sounds pretty similar. Did you have any side effects with Opdivo alone or just the combination?  I did the adjuvant therapy for a year with no side effects on Opdivo but I hear the combo is more toxic.  I’m hoping they’re manageable.

]]> 76cdb4526275303ffb57c2d26cc9bf79 https://forum.melanoma.org/forums/topic/iplimumab-nivolumb-after-unsuccessful-nivolumab/#post-274343 Tue, 09 Mar 2021 20:38:47 -0500 Quick edit the tumor went from 1.6cm to 2cm not increase of 1.6cm

]]> 17d0b11bbba5f43d6998e09fb59e4620 https://forum.melanoma.org/forums/topic/iplimumab-nivolumb-after-unsuccessful-nivolumab/#post-274342 Tue, 09 Mar 2021 20:09:25 -0500 Thanks Celest and Tim for the replies.  That was helpful information.

]]> b2fc2b02324fd5e6f884b733e12faa3b https://forum.melanoma.org/forums/topic/iplimumab-nivolumb-after-unsuccessful-nivolumab/ Mon, 08 Mar 2021 19:36:37 -0500 Quick background.  I was diagnosed with stage 3 melanoma at 43 when a cyst like bump appeard on my hip that once removed turned out to be Melanoma.  After removal scans showed NED.  Oncologist in Florence SC followed up with opdivo adjuvant therapy for a year and afterwards the scan showed it had spread to liver and lungs.  The largest tumor bei…Read more

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