https://forum.melanoma.org/user/mb82/activity/ Activity feed for MB. Thu, 23 Apr 2026 02:58:33 -0400 https://buddypress.org/?v= en-US 30 hourly 2 e6f805ad9d90b9a1a3777b2ad814837c https://forum.melanoma.org/forums/topic/immunotherapy-t-vec/#post-279440 Sat, 28 Oct 2023 19:13:02 -0400 Thank you, Celeste! Wow, very concerning that our local oncologist did not know this. Scary, honestly. Thank God for melanoma specialists!-MB

]]> 898e76243caf4fdd1ee28aac77504593 https://forum.melanoma.org/forums/topic/immunotherapy-t-vec/ Sat, 28 Oct 2023 00:51:46 -0400 Hello, my wife is stage IV and the melanoma is spreading quickly. She just had a 2nd cycle of ipi/nivo and so far we haven’t seen any indication that it’s working. We met with her oncologist today, who mentioned T-VEC but said she would have to stop ipi/nivo in order to do it. However, I read that others have done t-vec combined with imm…Read more

]]> c3008396ba431d2e5a92a4b7c14ca934 https://forum.melanoma.org/forums/topic/ipi-nivo-questions/#post-279365 Sat, 14 Oct 2023 10:23:36 -0400 *correction: she had her first infusion 2 weeks ago (feels like forever ago) and is due for the second cycle next week. Thanks!

]]> dac28420a30912c94e1aa4573b6e8f15 https://forum.melanoma.org/forums/topic/ipi-nivo-questions/ Fri, 13 Oct 2023 23:13:50 -0400 Hello, I wrote a few weeks back about my spouse who has stage IV melanoma with brain Mets and a heavy tumor burden (in every organ). She received her first infusion of ipi/Nivo 3 weeks ago, which has depleted of all of her energy and she has lost a lot of independence (went from walking and being active to now needing a wheelchair). She says she…Read more

]]> 682d8f2ffbf94d9cc1521d4362ab1afe https://forum.melanoma.org/forums/topic/stage-iv-need-help/#post-279255 Sun, 24 Sep 2023 19:37:38 -0400 Thanks, Judi, I’m working on getting a consultation with a melanoma specialist. I’m glad to hear you are NED!

]]> 8ac8a9ba0105a2036cb4f3e01af4b184 https://forum.melanoma.org/forums/topic/stage-iv-need-help/#post-279238 Fri, 22 Sep 2023 02:09:37 -0400 Thank you, Ash! I’m so glad to hear your partner is doing so well- it’s very comforting to know that there is hope with ipo/Nivo. I am eager for her to get started on it. Interestingly, she also had a large tumor removed from her cerebellum in May, which was successful. It’s been a roller coaster for sure! Ups and downs. Right now I am just prayi…Read more

]]> ec3bdac8e1932341e580528670dd16f2 https://forum.melanoma.org/forums/topic/stage-iv-need-help/#post-279230 Thu, 21 Sep 2023 01:06:12 -0400 Thank you so much, Celeste. I really appreciate your help and support. She isn’t scheduled to start immunotherapy until next Friday (9/29).. I hope that’s not too long of a wait. I think that was the soonest they could get her in. I will keep you updated.
Thanks,
-MB

]]> 58edf7b4597b886dc1f30364d75c8f87 https://forum.melanoma.org/forums/topic/stage-iv-need-help/ Tue, 19 Sep 2023 21:43:23 -0400 Hello, I am writing to hopefully get some guidance. My wife has Stage IV melanoma with brain mets. In June of this year, she began tafinlar + mekinist and had gamma knife radiation to her brain. She appeared to be doing very well- regained energy, appetite came back, feeling “normal.” So she got a PET scan and MRI last Friday and we saw her onc…Read more

]]> fc4b0a670f24cb6125985f6db7596890 https://forum.melanoma.org/activity/p/80407/ Tue, 19 Sep 2023 21:09:18 -0400 0