Melanoma Research Foundation | F-melanoma | Activity https://forum.melanoma.org/user/maryb-z/activity/ Activity feed for F-melanoma. Tue, 21 Apr 2026 13:19:39 -0400 https://buddypress.org/?v= en-US 30 hourly 2 d0aa83694c6ff180657b6fad3fa40409 F-melanoma replied to the topic Seeking advice for metastatic melanoma treatments in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/seeking-advice-for-metastatic-melanoma-treatments/#post-280388 Wed, 24 Jul 2024 14:10:48 -0400 Hi Brian,

Although my journey is vastly different from your wife’s (I am not Braf+), I want you to know my local oncologist (not a specialist) was not willing to give me prednisone when I was experiencing a myriad of inflammation and joint issues. I emailed Dr. Jeffrey Weber, whom I last saw in 2012! He responded that 5mg of daily prednisone…Read more

]]> 387ff698620af1faf1d6ab426ad659af F-melanoma's profile was updated https://forum.melanoma.org/activity/p/123946/ Sat, 13 Jul 2024 01:32:02 -0400 0 70e5f8ab74221fcb647f990ca83db7d9 F-melanoma replied to the topic Melanoma Focus Group in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/melanoma-focus-group/#post-280348 Mon, 08 Jul 2024 12:35:06 -0400 Excellent points for discussion, Judi. Thank you for responding!

]]> 2f66ce7968f748eb5294c36c3559334c F-melanoma started the topic Melanoma Focus Group in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/melanoma-focus-group/ Mon, 01 Jul 2024 00:58:17 -0400 Hi Everyone! I am a stage 3 melanoma warrior since 2009! It’s been quite a ride. The only option for treatment in 2009 was interferon and it had unbearable side effects and melanoma returned shortly after my month of treatment. I’ve had too many surgeries to count, a clinical trial, Imlygic, Opdivo, and I’m currently receiving Yervoy. I’ve been…Read more

]]> 59ea7a01506d13df1fe414e7d284587c F-melanoma replied to the topic 9th Recurrence in almost 15 yearsSame Leg in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/9th-recurrence-in-almost-15-yearssame-leg/#post-279691 Wed, 20 Dec 2023 01:30:54 -0500 Thank you, Edwin for the quick response. I am hoping my doc suggests resuming Opdivo. I did have to take 5mg of prednisone with it as my joints ached and my extremities swelled. I now deal with osteoporosis from 2 years of prednisone. Well worth it though.

]]> 83c4210fa97ff325659d79dbc9feb217 F-melanoma started the topic 9th Recurrence in almost 15 yearsSame Leg in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/9th-recurrence-in-almost-15-yearssame-leg/ Tue, 19 Dec 2023 20:50:51 -0500 Hoping Bubbles or someone who keeps up with melanoma treatment advances has some insight. Today after almost 3 years of NED a PET scan showed a large lesion (I can feel it on the surface of my leg.) I’ll be heading to my specialist hopefully in the New Year. I’ve had numerous surgeries, TVec and then Opdivo throughout this journey. Do you think…Read more

]]> 53eb1dafcc4179240eff211323ac8cf9 F-melanoma replied to the topic Has anyone had Oncolytic Viral Therapy as part of their treatment? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/has-anyone-had-oncolytic-viral-therapy-as-part-of-their-treatment-2/#post-279597 Wed, 06 Dec 2023 03:19:23 -0500 Hello! I had Imlygic/T-Vec therapy a few years ago. It was not successful and I ended up doing 2 years of Opdivo.

]]> 696a244e09974a43ca61972bd6d605d0 F-melanoma replied to the topic Imlygic® Therapy in the U.S in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/imlygic-therapy-in-the-u-s/#post-279494 Sun, 12 Nov 2023 01:37:12 -0500 Hi Isaac,

I was treated with TVEC in 2017 for 3 tumors in my lower leg. I remained stable for a short time-5 months and then was on Opdivo for 2 years. I wish your wife much luck!

]]> 7888f4973affb89bfb4980b57defbe75 F-melanoma replied to the topic Third Covid Vaccine in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/third-covid-vaccine/#post-275515 Tue, 17 Aug 2021 23:32:59 -0400

I did not qualify for the 3rd shot as I am no longer on steroids or any treatment. I do teach over 500 kiddos a week but that’s not a qualifier. I will be wearing a mask.

]]> d3c8613d83a69b439b06e4108765523c F-melanoma replied to the topic Who is NED for 5 or more years? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/who-is-ned-for-5-or-more-years/#post-275341 Tue, 13 Jul 2021 01:17:40 -0400 Although not NED for 5 years I am still here 12 years after being diagnosed. Lots of recurrences, surgeries, interferon, clinical trial, T-vec and most recently completed 2 years of Opdivo. Grateful for all the bonus time.

]]> f16daa0e431b19aa8a8978fe8b766057 F-melanoma replied to the topic How many times can nodular melanoma come back? in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/how-many-times-can-nodular-melanoma-come-back/#post-274293 Sun, 28 Feb 2021 00:57:08 -0500 Hi!

Nodular melanoma diagnosis 2009 with at least 8 recurrences-I lost count. I completed 2 years Opdivo October 2020. My November scan showed no active disease but I have learned how sneaky melanoma can be. No organ involvement just all over my right leg.  Just stay vigilant. Grateful for all my BONUS time.

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