Melanoma Research Foundation | Lilara | Activity https://forum.melanoma.org/user/lilara/activity/ Activity feed for Lilara. Thu, 23 Apr 2026 11:52:09 -0400 https://buddypress.org/?v= en-US 30 hourly 2 b37c0474e20085af61c270aa964d4639 Lilara posted an update: What is best option for melanoma tumor in brain cyber knife or surger https://forum.melanoma.org/activity/p/18356/ Fri, 06 May 2022 02:11:08 -0400 What is best option for melanoma tumor in brain cyber knife or surger

]]> 0 3ed764c0c4fc4882a1e4e2439084e755 Lilara replied to the topic Pan Raf inhibitor trial in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/pan-raf-inhibitor-trial/#post-275472 Tue, 10 Aug 2021 23:53:36 -0400 Thanks for putting this article . Very interesting

 

]]> fcadf69026655a90b9d70bd91397604b Lilara replied to the topic Pan Raf inhibitor trial in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/pan-raf-inhibitor-trial/#post-275471 Tue, 10 Aug 2021 23:48:39 -0400 The oncologist did a test and found out that my mom has NRAS mutation.

thanks

]]> 0d7ce5c5a579013f9921ddc28ced0dcc Lilara replied to the topic Pan Raf inhibitor trial in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/pan-raf-inhibitor-trial/#post-275470 Tue, 10 Aug 2021 23:47:40 -0400 Thanks Mark for your advice . I will find out about this trial more . But I am still thinking maybe my mom should try the ipi nivo combo and might work before considering the trial.

]]> e004889443fb9211bdb62368077e46e5 Lilara started the topic Pan Raf inhibitor trial in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/pan-raf-inhibitor-trial/ Mon, 09 Aug 2021 16:09:31 -0400 Hi , My mom she has NRaS mutation and she has a tumor in her pelvis which is growing slowly and she is currently on immunotherapy . The doctor is saying maybe we should try pan raf trial. Does anyone know more about this or have done this . Since we are in Canada IpI / nivo together is not available after progression on keytruda . We need to pay…Read more

]]> d43464b78016fe28863e25d0179caf14 Lilara started the topic Antibiotic may kill cancer cell in melanoma in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/antibiotic-may-kill-cancer-cell-in-melanoma/ Thu, 22 Jul 2021 20:32:02 -0400 https://www.eurekalert.org/pub_releases/2021-07/kl-amh072121.php

I just saw this article about using antibiotic to kill melanoma cancer cell. Can they just give to the patient ? I do not understand why they have to do so many clinical trials until they see the result . All these people are taking all these high risk drugs with a lot of side…Read more

]]> fe0ce3c5f2b56d719fa881c84642978d Lilara replied to the topic Nercosis in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/nercosis/#post-274103 Tue, 02 Feb 2021 03:05:09 -0500 Thanks Mark for your response . My mom was on keytruda but the tumors were not shrinking so the dr is looking at her tumor to see if she is eligible for pd1 and lag3 , since she was denied ipi/nivo

but now at her biopsy they have found extensive necrosis . So we will see the dr on Thursday. So I hope the cancer cells are dying . But I don’t k…Read more

]]> 1a53d509857d1a683565cce262f81351 Lilara started the topic Nercosis in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/nercosis/ Sat, 30 Jan 2021 12:53:02 -0500 my mom wanted to get lag3 and pdl1 clinical trial treatment but they wanted to get the biopsy to do molecular testing .

today we got this result from her pathology report :Given the extensive necrosis, this specimen would not be appropriate for molecular testing. The tumor that they did the biopsy shows extensive deal tissue . She was on keytruda…Read more

]]> 15c14c33b20d71759617e146d2b42339 Lilara replied to the topic Is More Surgery The Only Option? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/is-more-surgery-the-only-option/#post-273762 Sun, 27 Dec 2020 21:08:14 -0500 My mom is being treated at SunnyBrook as well. I would ask about medication for BRAF. They work pretty well for a while . My mom does not respond to keytruda or pembo. So I have asked for combination therapy ipi/nivo and province denied it because she started with mono therapy . I have even offered to pay for one treatment but they are very slow…Read more

]]> 44ce0cc90d5f4140c5121c45ea10b991 Lilara replied to the topic 3rd PET Scan coming up, back to being nervous in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/3rd-pet-scan-coming-up-back-to-being-nervous/#post-273755 Sun, 27 Dec 2020 04:26:39 -0500 I am sorry to hear about your diagnosis. My mom has also stage 2B in September 2017 and in April 2017 stage 4. You need to make sure they do the pet scan or ct scan every 6 months . In my mom case they just look through her skin no ct scan was done . I wish I knew this before . They did not have that as part of their protocol since she has a…Read more

]]> f34703244d3b75905bb796251cf07a69 Lilara replied to the topic Is More Surgery The Only Option? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/is-more-surgery-the-only-option/#post-273754 Sun, 27 Dec 2020 04:13:56 -0500 Hi, I am sorry to hear this about your mom. My mom is  in the same situation and she was also put on pembo. But it is progressing . We are in Canada too. Which hospital do you go to ? There are more clinical options but I am not sure if she can handle that. Also she can try ipi and nivo which the province won’t pay since she has not started on it…Read more

]]> 895963f411879aff02e09b7ce745646c Lilara started the topic Melanoma progress in Canada in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/melanoma-progress-in-canada/ Tue, 08 Dec 2020 02:51:44 -0500 Hi,
My mom progress on pembo and she has nras mutation. Her oncologist asked for combination treatment . This is what we got from Ontario drug company.
This note is to document that we submitted prior approval request
for switch to ipilimumab and nivolumab for her metastatic melanoma. She is currently on
pembrolizumab. Unfortunately the…Read more

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