https://forum.melanoma.org/user/jrtufo/activity/ Activity feed for jrtufo. Sat, 04 Apr 2026 05:22:52 -0400 https://buddypress.org/?v= en-US 30 hourly 2 5ffc877197d6ec9687e378f90dedb007 https://forum.melanoma.org/forums/topic/possible-recurrence-after-5-years-need-a-crash-course-on-the-latest-treatment-2/#post-277210 Wed, 07 Sep 2022 14:39:04 -0400 Best of luck with the Pembro combo. Every day science is learning another amazing thing – keep the faith. JT

]]> 5faaed21165e9a5710bb042a1a4f0a99 https://forum.melanoma.org/forums/topic/possible-recurrence-after-5-years-need-a-crash-course-on-the-latest-treatment-2/#post-277175 Mon, 29 Aug 2022 16:07:45 -0400 Hi AZ-I’m in a similar boat-recurrence after five years with hard/tender lump near original site (parotid gland). Just a heads up-two needle and one core biopsy showed this as a benign adenoma yet my oncologist at U of Colorado said…”hmmm, I don’t buy this with some activity showing in the PET scan…” bless her skeptical heart because after…Read more

]]> 442f202da3caad9162618b350c519d6d https://forum.melanoma.org/forums/topic/local-recurrence-9/ Mon, 24 Jan 2022 16:19:35 -0500 After more than 4 yrs on taf/mek my most recent MRI is showing a local recurrence from the incomplete resection of a tumor removed (mostly) from my parotid as well as enlarged lymph nodes in the area. Since I had progression on Keytruda, and had to stop vemurafenib due severe AR, I’m wondering what my chemical options might be. Trying to…Read more

]]> b3ff98bf59ee6ae2130af8ef75d4a856 https://forum.melanoma.org/forums/topic/treatment-time-limits-on-taf-mek/#post-274952 Fri, 11 Jun 2021 14:16:57 -0400 Thank you Celeste-while I don’t post very often I have always valued your sound research and heartfelt replies.  I am so lucky that this combo has worked for me (particularly given my very grim options and prognosis four years ago!)  I know that melanoma will never truly be in my “rearview mirror” but stopping treatment would give me some peace o…Read more

]]> 2511d57ab22dda8e3e4035aeef0c55c5 https://forum.melanoma.org/forums/topic/treatment-time-limits-on-taf-mek/#post-274951 Fri, 11 Jun 2021 14:08:02 -0400 Norvitis was unbelievably helpful with co-pay assistance although I maxed out and now I’m on the hook each year until I meet my deductible responsibilities.  So (fortunately) thus far the $ part has been manageable and insurance hasn’t tried to impose a limit even though the drug company itself suggests no more than one year.  Thank you so much f…Read more

]]> 8c39b2602fd1433db1b837d5d73b2c3c https://forum.melanoma.org/forums/topic/treatment-time-limits-on-taf-mek/ Thu, 10 Jun 2021 18:55:37 -0400 Been on the Taf/Mek combo after an incomplete excision of a melanoma tumor in parotid gland.  Remaining tumor has disappeared and I’ve been on this oral chemo combo for over three years.  Anyone else a “longterm user” of this combo?  When I started on this drug (having “failed” Keytruda and vemurafanib) my Dr was vague about the length of time I’…Read more

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