Melanoma Research Foundation | jjanekroll1 | Activity https://forum.melanoma.org/user/jjanekroll1/activity/ Activity feed for jjanekroll1. Tue, 21 Apr 2026 21:04:05 -0400 https://buddypress.org/?v= en-US 30 hourly 2 d0842bc814fb8f32474e1a4fcc3a6d84 jjanekroll1 replied to the topic Bone Strengthening Agents following Immunotherapy Stage 4? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/bone-strengthening-agents-following-immunotherapy-stage-4/#post-280591 Thu, 09 Jan 2025 15:34:03 -0500 I hope not because this is harder mentally than treatment was 🙁 (for me!)

]]> 1726678bc9c57ad190910380185eca87 jjanekroll1 replied to the topic Bone Strengthening Agents following Immunotherapy Stage 4? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/bone-strengthening-agents-following-immunotherapy-stage-4/#post-280590 Thu, 09 Jan 2025 15:33:24 -0500 May I ask how it did interfere with your activity levels? Did you ever have pone pain / soreness?
Also did you have radiation at all during treatment?

]]> 0f0b0802e5efe10bbf10eee978d7acd2 jjanekroll1 replied to the topic Bone Strengthening Agents following Immunotherapy Stage 4? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/bone-strengthening-agents-following-immunotherapy-stage-4/#post-280587 Thu, 09 Jan 2025 01:56:05 -0500 And you were able to keep running during the treatments? I very much appreciate your info!!

]]> a5c3e733d624b97b5b2b064f9a8f7d99 jjanekroll1 replied to the topic Bone Strengthening Agents following Immunotherapy Stage 4? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/bone-strengthening-agents-following-immunotherapy-stage-4/#post-280585 Thu, 09 Jan 2025 01:07:51 -0500 Throughout the process they did not measure the bone mass index?

]]> 5715163d23d0fccdb9b6fa56d898c582 jjanekroll1 replied to the topic Bone Strengthening Agents following Immunotherapy Stage 4? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/bone-strengthening-agents-following-immunotherapy-stage-4/#post-280583 Thu, 09 Jan 2025 00:20:27 -0500 Thank you again!
Were you able to simply stop the treatment? Were you able to see improvements with your bone mass during the time your were on it, and was there a specific reason that your dr chose that drug as opposed to others?

]]> c9d0d4225b858ea6f403cf0982bde8bc jjanekroll1 replied to the topic Bone Strengthening Agents following Immunotherapy Stage 4? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/bone-strengthening-agents-following-immunotherapy-stage-4/#post-280581 Wed, 08 Jan 2025 22:24:17 -0500 Thank you, Edwin! May I ask how many infusions you had and how long you had treatment? Did they say you would have to restart at any point or that there would be long term consequences for which to be aware?

]]> 0b8c9dc6ccb896657d495eb02e94f4b0 jjanekroll1 started the topic Bone Strengthening Agents following Immunotherapy Stage 4? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/bone-strengthening-agents-following-immunotherapy-stage-4/ Wed, 08 Jan 2025 20:54:49 -0500 Hi!
I am looking to hear from anyone that may have had a positive result from bone strengthening agents after finishing immunotherapy / treatment. I had brain surgery; radiation to the brain and lung; Keytruda 2 x (stopped because it increased the size of the tumor near my heart); doublet (Opdivo / Yervoy) x 3 and then Opdivo x 50 (a lot). For…Read more

]]> f5856505bfca3dc2228830f08fa67156 jjanekroll1 replied to the topic Melanoma regression w/ immunotherapy... Recent CT shows new mass in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/melanoma-regression-w-immunotherapy-recent-ct-shows-new-mass/#post-276020 Tue, 23 Nov 2021 18:18:07 -0500 Hi Jennifer!

Yet another Jennifer here again…:)

I don’t like to talk about my current therapy / cancer treatment agenda – it makes me feel like I am regressing rather than progressing if that makes any sense at all. Regardless, I was so sorry to hear about the recurrence for you!

I was diagnosed in May 2019 – brain, lymph nodes, left ovary…Read more

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