Melanoma Research Foundation | JD_NY | Activity https://forum.melanoma.org/user/jilllazz/activity/ Activity feed for JD_NY. Tue, 21 Apr 2026 23:43:43 -0400 https://buddypress.org/?v= en-US 30 hourly 2 04a212e57bbbdf6aff517c51d4c4bbd2 JD_NY replied to the topic New baby and new diagnosis in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/new-baby-and-new-diagnosis/#post-276622 Thu, 21 Apr 2022 02:49:12 -0400 Amanda, I hope that by now you have heard back the results on your WLE and have received good news.

Our children are older, but when my husband received his diagnosis back in September, our world ground to a halt as we worried about if his time with the children was limited. Also, when my oldest was a newborn, I had a cancer scare. I was…Read more

]]> 78e626887f331cbfde284ffceb19d5cd JD_NY started the topic WLE / SLNB - what to expect? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/wle-slnb-what-to-expect/ Mon, 11 Oct 2021 03:22:44 -0400 My husband’s WLE/ SLNB is on Wednesday. We’ve been so busy trying to learn about Melanoma in general and to get all the paperwork, preop stuff done in time to have it on this date (as the doctor’s next available date wasn’t until month end), that we haven’t focused on the procedure itself.

WLE is on his cheek so SLNB will be somewhere in neck. …Read more

]]> a8884b3f402011b0e059969cf52d42d4 JD_NY replied to the topic New diagnosis, slow process, concerned in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/new-diagnosis-slow-process-concerned/#post-275812 Fri, 08 Oct 2021 19:40:04 -0400 My husband was just diagnosed also, and as Ed says, get a copy of the pathology report of the biopsy.  Call your mom’s derm to find out what you need to do to get a copy (your mom probably has to fill out a form).  Once we got my husband’s, so many more details were available to help understand what we are starting with.  Once you have that you ca…Read more

]]> 6351b841b559ee6d7ef8811c3bcaa4cd JD_NY replied to the topic The TIL process in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/the-til-process/#post-275752 Wed, 29 Sep 2021 17:32:35 -0400 Tim, I’m new to these boards (husband just diagnosed) and I have been reading about your TIL journey.  I really hope that your quality of life/recovery had improved even more over the past couple weeks and I really really hope that you get (or got) great news from your scans.

]]> e3aaca1c3be32d6fd0d5d9fd4f40e77a JD_NY replied to the topic New- so much to learn - some questions in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/new-so-much-to-learn-some-questions/#post-275749 Wed, 29 Sep 2021 14:32:16 -0400 I disappeared for a day there while trying to get something scheduled for my husband.  Happy to say we have a consult with a surgical oncologist at Sloan Kettering on Thursday.  The one he was assigned is a face and neck person who is does a bunch of stuff in addition to skin cancer.  I was hoping for someone more specific to Melanoma but we di…Read more

]]> 750584ff6f29af78b03398c9aec11723 JD_NY replied to the topic New- so much to learn - some questions in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/new-so-much-to-learn-some-questions/#post-275737 Mon, 27 Sep 2021 01:08:17 -0400 Thank you, Bill. You are 100% right that even having to wait through the weekend after a diagnosis is torture.  So if I read this correctly, it sounds like it was approximately 16 days from contacting MSK until surgery?   I know there are delays in surgeries at many hospitals because they are full of COVID patients – I’m thinking/hoping that si…Read more

]]> dd57bc4e1df2fade720ac573ae8c62cf JD_NY started the topic New- so much to learn - some questions in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/new-so-much-to-learn-some-questions/ Sun, 26 Sep 2021 21:15:31 -0400 Hi, My husband found out Friday that a biopsy came back positive for melanoma.  I have been reading on this forum and learned so much already, but it’s only a tiny fraction of what we need to learn.  The details:

I don’t have the biopsy report (yet).  He’s had a mole on his face for decades.  Not that large – he had a derm look at 5 years ago…Read more

]]> 9114e9d12dc63a567e93f851140dc8c6 JD_NY became a registered member https://forum.melanoma.org/activity/p/8205/ Sun, 26 Sep 2021 18:12:03 -0400 0