Melanoma Research Foundation | Ireland1 | Activity https://forum.melanoma.org/user/ireland1/activity/ Activity feed for Ireland1. Thu, 23 Apr 2026 20:38:11 -0400 https://buddypress.org/?v= en-US 30 hourly 2 28d33971499525e6d7d08f0a37fae704 Ireland1 replied to the topic Latest scan showing small bowel thickening .. is this recurrence? in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/latest-scan-showing-small-bowel-thickening-is-this-recurrence/#post-276405 Sat, 26 Feb 2022 12:31:22 -0500 Hi Gerry,
When we first started out on this journey stage 2a / node negative – my husband had a full staging ct / PET which commented on localised small bowel thickening – it turned out to be nothing. I really hope yours does too. Just thought always good to hear of similar situations that did not end up being melanoma.

]]> 4859853a1732fde5817fe3af0e0594fd Ireland1 replied to the topic Covid vaccine and immunotherapy in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/covid-vaccine-and-immunotherapy/#post-276086 Thu, 09 Dec 2021 10:42:13 -0500 Bubbles – just wanted to thank you for all your input on this board.  You manage to provide lots of evidence based information in user friendly posts and we’re very lucky to have you here.

]]> d7fbaf06493fc9433fd28d73c365d092 Ireland1 replied to the topic Toxicities - stopping treatment in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/toxicities-stopping-treatment/#post-275683 Wed, 15 Sep 2021 13:19:18 -0400 Thanks Celeste – that’s really helpful – your blog is fantastic.

]]> 6ba330b52bfa519a638347c254d5beae Ireland1 started the topic Toxicities - stopping treatment in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/toxicities-stopping-treatment/ Tue, 14 Sep 2021 12:27:16 -0400 Just wanted to hear others experiences with toxicities and permanently stopping treatment early.  My husband had 2 x ipi / nivo before developing a severe colitis / enteritis (whole GI tract involved) – requiring infliximab.  After a steroid wean resumed nivolumab and has developed a severe / dramatic arthritis affecting multiple large joints a…Read more

]]> a1dc4db17a8b68ee46d5b5baaaad9725 Ireland1 started the topic Weber discusses ASCO 2021 in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/weber-discussed-asco-2021/ Wed, 18 Aug 2021 19:53:28 -0400 https://www.onclive.com/view/research-reflections-weber-relays-melanoma-updates-from-the-2021-asco-annual-meeting

Weber discussing latest study updates from ASCO 2021 – will be of interest to many here

]]> 7d5200bdd8c71ce1f9d0aefef34055b9 Ireland1 replied to the topic Getting a mole removed, doctor has me really spooked in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/getting-a-mole-removed-doctor-has-me-really-spooked/#post-274982 Mon, 14 Jun 2021 20:33:12 -0400 Amy – so many of us can empathise with what you’re going through.  First of all – keep reminding yourself this may not be melanoma – and even if it is – you, like many people may just require the lesion to be removed and nothing further.  This board is unfortunately skewed by those of us who have not been so lucky.   Many people with melanoma have…Read more

]]> d1f4917d559afd5fdfe165200815c1f3 Ireland1 replied to the topic Need the best for my dad. Anyone in UK/Europe with good news? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/need-the-best-for-my-dad-anyone-in-uk-europe-with-good-news/#post-274939 Wed, 09 Jun 2021 16:18:35 -0400 So sorry for what you and your Dad are going through.  This is the worst part – waiting for the exact diagnosis / extent of disease to be confirmed.  I imagine once you have the biopsy you will see the local oncologist quickly.  I think it would be important to try and clarify time frames for that and use it as a starting point to see what she of…Read more

]]> cd84320dbad5cb88ef8ba9f6b3bbce69 Ireland1 replied to the topic Day 4 of ipi/novo - minimal side effects. Does that mean anything? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/day-4-of-ipi-novo-minimal-side-effects-does-that-mean-anything/#post-274912 Thu, 03 Jun 2021 21:39:39 -0400 It is so completely variable – hopefully you will be one of the lucky ones and not struggle with toxicities.  You do not need to have side effects to get a response.   The time frames on onset of side effects are so variable that I think the only strategy is a day at a time – savour the good days – and report side effects if they occur.  There ar…Read more

]]> 6de0574b4470da401933c46f2289251d Ireland1 replied to the topic Stage IV confirmed - scared beyond believe in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/stage-iv-confirmed-scared-beyond-believe/#post-274838 Sat, 29 May 2021 10:19:19 -0400 https://www.esmo.org/content/download/124130/2352601/1/ESMO-Patient-Guide-on-Immunotherapy-Side-Effects.pdf

This is a great overview of potential side effects / frequency etc – it also gives you an idea of what treatment might be needed depending on severity so that you can flag symptoms early and ensure they get dealt with.  I’m hoping you ge…Read more

]]> 4288dc49e1581c712af692769eb90bea Ireland1 replied to the topic Melanoma to lung? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/melanoma-to-lung/#post-274562 Tue, 20 Apr 2021 11:43:31 -0400 Read your post and can empathise with how you’re feeling.  The majority of lung nodules are benign – but a history of malignancy such as melanoma, a new nodule since diagnosis of your melanoma (you may not have had precious chest X-rays) or larger lesions makes the risk of it being cancerous increase.  I hope that this will be a non melanoma rel…Read more

]]> 37dbfd2fff66d8e892afd0ac511c38c0 Ireland1 replied to the topic Immunotherapy post colitis in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/immunotherapy-post-colitis/#post-274505 Wed, 14 Apr 2021 20:05:07 -0400 Thanks Judi – your diarrhoea sounds like what my husband started out with – persistent but manageable – if only it had stayed that way for us.  Great that you were able to continue combination treatment.

it’s so helpful to read that you’ve done well with nivo monotherapy SRV – which is what we are going to be resuming following our meeting toda…Read more

]]> 4803ae90e96331b17a0f98a58067819e Ireland1 replied to the topic Immunotherapy post colitis in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/immunotherapy-post-colitis/#post-274488 Sun, 11 Apr 2021 13:34:43 -0400 What a rollercoaster threefitty – really interesting to read your experience of ipi after a severe colitis.  It’s all such a judgement call on the part of the oncologist – lots of the guidelines seem to suggest permanent discontinuation with grade 3 colitis (and absolutely with grade 4) but as you point out when you clearly seemed to respond to th…Read more

]]> 98def241e443c4b05a8a2a7bbbe1a52f Ireland1 replied to the topic Immunotherapy post colitis in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/immunotherapy-post-colitis/#post-274486 Sat, 10 Apr 2021 10:01:00 -0400 Thank you both for replying.  I can’t even imagine how tough 10mg/kg must have been – you probably had quite enough in your system with two rounds at that dose.

I hadn’t even thought of a reduced dose Edwin or indeed nivo first and then returning to combination with ipi.  I think they’re likely to say we’re done with ipi but it would be great if…Read more

]]> c93004fa979d52d9bd018aa31a389442 Ireland1 replied to the topic Immunotherapy post colitis in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/immunotherapy-post-colitis/#post-274479 Fri, 09 Apr 2021 11:04:35 -0400 Should say he had 2 x ipi/nivo – had mild diarrhoea until second infusion.

]]> ac6b2acf30546189c127716c6ea3a9cd Ireland1 started the topic Immunotherapy post colitis in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/immunotherapy-post-colitis/ Fri, 09 Apr 2021 10:57:36 -0400 Hi all,

Just wondered has anyone any experience of immunotherapy post colitis.  My husband is stage 4 with lung metastases he had diarrhoea from day 5 of his first ipi / nivo with ended up in stage 3 colitis – 10 day hospital admission and ultimately getting infliximab which led to almost instant miraculous resolution of symptoms.  He is a r…Read more

]]> 3a5079d9ba634259a989f285d03884a8 Ireland1 replied to the topic Lung Mets progression after one ipi/nivo? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/lung-mets-progression-after-one-ipi-nivo/#post-274395 Sun, 21 Mar 2021 00:37:41 -0400 I am new to the forum and await some of the experienced contributors input.  I just wanted to wish you well next week – you’ve had such a rough road.  As you were only able to get one ipi/nivo treatment – I wonder is it hard to assess how you may have responded with more – and rather than a treatment failure you just need a chance now at a sus…Read more

]]> e8f21515ba541fe4ba143883721e20af Ireland1 replied to the topic Biopsy of lung lesion - negative - advice.... in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/biopsy-of-lung-lesion-negative-advice/#post-273864 Fri, 08 Jan 2021 21:03:45 -0500 Thank you Melwave and Ed.  Melwave – when you responded privately I presumed you did so for a reason and followed suit – always want to respect people’s privacy – but sounds like we’re all on the same page – this open discussion forum is how we all gain!  I’m very new to this but reading through threads has been so helpful!  It took at least te…Read more

]]> 3217d17462bcd5af91fb267d1aa3a3fe Ireland1 replied to the topic Biopsy of lung lesion - negative - advice.... in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/biopsy-of-lung-lesion-negative-advice/#post-273858 Fri, 08 Jan 2021 17:39:24 -0500 Thank you so much for replying – I just read your original post and I’m so sorry to see you’re in this awful situation too.  Our oncologist seems quite fixed on getting tissue but we meet on Monday to discuss further.  The original scan was in early November so things have moved quite slowly – not his fault, our dermatologist wanted second opini…Read more

]]> f369ee222fa3205047f9d80e8af7fed8 Ireland1 started the topic Biopsy of lung lesion - negative - advice.... in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/biopsy-of-lung-lesion-negative-advice/ Fri, 08 Jan 2021 15:47:52 -0500 Hi all,

Im a long time lurker and first time poster!  I can’t tell you how helpful reading posts has been helpful over recent weeks.

 

Brief summary – my 43 year old husband had a non ulcerated superficial spreading on his ear in 1/2013 – 2.13mm – node negative – I think BRAF negative also (has just been checked). Surgical excision and well un…Read more

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