Melanoma Research Foundation | CindyJ | Activity https://forum.melanoma.org/user/cindyj/activity/ Activity feed for CindyJ. Tue, 21 Apr 2026 21:30:29 -0400 https://buddypress.org/?v= en-US 30 hourly 2 985a0facbee34a8c1fea8b8961fb4834 CindyJ replied to the topic LDH concerns in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/ldh-concerns/#post-274651 Wed, 05 May 2021 06:56:44 -0400 I’m no expert but as someone who’s been riding my mother’s oncologist for four years regarding her LDH number I can offer the following. My mom’s number has spiked several times close to your number. Her doctor always has to remind me that the LDH is not the best tumor marker, but is all they have for melanoma. Lots of things can make the number…Read more

]]> 3bb0a5b2110a67d5e8d438956deebac3 CindyJ replied to the topic Looking for Opinions - Targeted Therapy - Ibrance in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/looking-for-opinions-targeted-therapy-ibrance/#post-274631 Thu, 29 Apr 2021 10:09:04 -0400 Thank you Ed for taking the time to reply, again! I have a better understanding now! We’ll discuss her options with her oncologist, and if we decide it’s time to stop, we’ll pray that if she ever needs to get back on, the drug will work again.

I’m wondering how GeoTony is doing. He started Ibrance I believe in 2019. I’ve not seen any posts sin…Read more

]]> 3f62ed5b9e81062ca808777034fc82ab CindyJ replied to the topic Looking for Opinions - Targeted Therapy - Ibrance in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/looking-for-opinions-targeted-therapy-ibrance/#post-274625 Wed, 28 Apr 2021 12:39:44 -0400 Thank you so much, Ed for the reply and link!!! I have also been reading an Ibrance forum.

My mom and I are really struggling with a decision to get off the drug. We see her oncologist on Monday. My main concern is being on the drug so long. It’s really taken a toll on her body.  I don’t read about people being on immunotherapy or chem…Read more

]]> 02ebedc1a84e4a9b384556fb7ec5b1d0 CindyJ started the topic Looking for Opinions - Targeted Therapy - Ibrance in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/looking-for-opinions-targeted-therapy-ibrance/ Wed, 28 Apr 2021 06:03:29 -0400 Hello All! It’s been a couple years since I’ve posted, but continue to read the forum. I’m looking for opinions for my mother, as so many of you are experts on melanoma and cancer in general.

My mom started Ibrance (palbociclib) almost four years ago when her genome test showed a CCND1 amplification. She has been NED for over three years. She n…Read more

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