Melanoma Research Foundation | BTM | Activity https://forum.melanoma.org/user/briantmullis/activity/ Activity feed for BTM. Mon, 20 Apr 2026 19:08:53 -0400 https://buddypress.org/?v= en-US 30 hourly 2 4fc53223a180ba7147645cb888a34555 BTM replied to the topic Battling Metastatic Melanoma is a Lonely Experience in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/battling-metastatic-melanoma-is-a-lonely-experience/#post-276375 Mon, 21 Feb 2022 22:28:34 -0500 Dear Mark, Celeste and Daisy,

You guys are truly awesome! My appointed social worker at OHSU has been searching for months for someone for me to connect with to no avail. I wish I would have taken more of a lead and discovered the forum sooner. All good things in good time.

Fortunately, I learned early on that you have to become the captain of…Read more

]]> a7a3d974ed7f3d2426c2a7aa083002b1 BTM replied to the topic Battling Metastatic Melanoma is a Lonely Experience in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/battling-metastatic-melanoma-is-a-lonely-experience/#post-276368 Mon, 21 Feb 2022 01:48:23 -0500 Hey Daisy, I really appreciate your reaching out and sharing. I’m getting treatment at OHSU in Portland, OR. They made it sound like nivolumab was standard care, whereas the bempeg is a clinical drug trial that I understand has had some promising results.
It’s great to hear Optivo/Yervoy are working well for you!

I too sleep a lot on the cou…Read more

]]> f7a0d957ac7b73383591c5511e3c3ce5 BTM replied to the topic Battling Metastatic Melanoma is a Lonely Experience in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/battling-metastatic-melanoma-is-a-lonely-experience/#post-276365 Sun, 20 Feb 2022 16:51:54 -0500 My treatment for stage 3c metastatic melanoma involves 17 infusions of Bempegaldesleukin (BEMPEG: NKTR-214) in combination with Nivolumab every three weeks. I just had treatment 9 of 17, so I’m now over half way through. The side effects have lessened over time but still involve major fatigue, nausea, dizziness, body aches,loss of appetite, i…Read more

]]> 0f3e0e40d97f98a1f63244fcb9e07ce2 BTM started the topic Battling Metastatic Melanoma is a Lonely Experience in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/battling-metastatic-melanoma-is-a-lonely-experience/ Sat, 19 Feb 2022 19:13:15 -0500 I’m 6 months into my journey and would benefit from connecting with others who are in the same position.

]]> 30cfab7e31f851cc47a65c2f2fc0031b BTM became a registered member https://forum.melanoma.org/activity/p/14104/ Sat, 19 Feb 2022 19:06:58 -0500 0