Melanoma Research Foundation | BillB | Activity https://forum.melanoma.org/user/billb/activity/ Activity feed for BillB. Tue, 21 Apr 2026 08:54:17 -0400 https://buddypress.org/?v= en-US 30 hourly 2 88ae03a5deb5ddc7dc4a81d9b3a44ed9 BillB replied to the topic 6 years NED in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/6-years-ned-4/#post-277434 Sun, 09 Oct 2022 01:29:08 -0400 Congrats!!!!!!!!!

]]> b5357e564bb121d3b9f11b9120b5ec6c BillB replied to the topic 5 Year Nedaversary! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/5-year-nedaversary/#post-277381 Tue, 04 Oct 2022 01:37:13 -0400 Thank you everyone and best wishes.
Bill

]]> c404658206be0011cc7c923de8698ebe BillB replied to the topic 5 Year Nedaversary! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/5-year-nedaversary/#post-277380 Tue, 04 Oct 2022 01:36:09 -0400 Hi Cindy,
I also had a CR within 2 months of starting Keytruda. I stayed on Keytruda for another 26 months. My oncologist suggested going to annual scans based on my history with a CR. I haven’t decided whether I will go to 6 month scans yet and my oncologist is more than ok with whatever I choose. Hopefully I answered your question, if not please…Read more

]]> 3f5dc923d0dc2feb8330964bfb5bdd37 BillB started the topic 5 Year Nedaversary! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/5-year-nedaversary/ Mon, 26 Sep 2022 22:42:41 -0400 Hi, Just checking in as I received results for my last set of scans and I have reached the 5 year mark for NED. Seems like a pretty important milestone compared to the potential 9 month survival statistic when I went to stage 4. More importantly I still appreciate all of the kind people that provided me support and knowledge over the past 6 years.…Read more

]]> 527657f025dc1d0aee2eb4c06d89c7bc BillB replied to the topic Update BillB in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/update-billb/#post-276526 Mon, 28 Mar 2022 01:00:05 -0400 Thanks everyone!ood to hear from everyone. Bill

]]> 40ccfbb6236b6843b44c8e3b9a4a8e2f BillB started the topic Update BillB in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/update-billb/ Thu, 24 Mar 2022 01:48:16 -0400 Just checking in to provide a 4.5 year NED update. Received my 6 month scan results today and still NED!
Wishing well for everyone and future success for all!.
Bill

]]> 46abe150ea34d418425d7ead270dbf9e BillB replied to the topic New- so much to learn - some questions in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/new-so-much-to-learn-some-questions/#post-275738 Mon, 27 Sep 2021 01:56:50 -0400 You have lots of questions, If you would like to call me tomorrow morning and talk I can give you all of the information you need. Let me know and I will provide you my info.

Bill

]]> 74bf6f1c04971e49b327dd5e5a5265b9 BillB replied to the topic New- so much to learn - some questions in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/new-so-much-to-learn-some-questions/#post-275736 Mon, 27 Sep 2021 00:25:24 -0400 Also, although it seems like you must do something this minute you do have time to do it “right”.  It won’t change anything in the short term. I contacted MSK and visited with my surgeon, plastic surgeon and oncologist 8 days after I contacted them. I had my first surgery 8 days after the first meeting. The care I was provided was outstanding!…Read more

]]> fca498804cd3d79745cdb8d739a8de3c BillB replied to the topic New- so much to learn - some questions in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/new-so-much-to-learn-some-questions/#post-275735 Mon, 27 Sep 2021 00:19:01 -0400 Hi, I to am from upstate NY. Best decision I ever made was to go to Memorial Sloan Kettering. They got me in very quickly, and they know exactly what to do. If your oncologist is not just a melanoma expert you need to see someone who only treats melanoma.

I was diagnosed 2c in November 2016, stage 3c March/April 2017, and stage 4 August 2017. It…Read more

]]> 5d232df722aab4b6886895a00472fe8e BillB replied to the topic Who is NED for 5 or more years? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/who-is-ned-for-5-or-more-years/#post-275684 Wed, 15 Sep 2021 13:22:26 -0400 Thanks Celeste. Ive been here all along just don’t like this format. If I can add something that you, Ed and Jackie don’t cover I will. Hope all is well with you!

Bill

]]> 728eb17a3da2318d7674a72ab64eca95 BillB replied to the topic Who is NED for 5 or more years? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/who-is-ned-for-5-or-more-years/#post-275677 Wed, 15 Sep 2021 00:44:09 -0400 Four years Ned today. Just got results of my scans and consider myself extremely lucky and fortunate. Good luck to everyone, and I don’t like this forums format. The old forum was much nicer. Shoutout to everyone (celeste, Ed, et al  etc) to keep up the great work you have been doing for so long!

Bill

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