Melanoma Research Foundation | Beth | Activity https://forum.melanoma.org/user/beejer/activity/ Activity feed for Beth. Tue, 12 May 2026 04:42:30 -0400 https://buddypress.org/?v= en-US 30 hourly 2 06e34a49769874af620d38e682b7cfd7 Beth replied to the topic LDH concerns in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/ldh-concerns/#post-274656 Wed, 05 May 2021 17:48:41 -0400 I just had this exact conversation with my oncologist today because I’ve had similar results.  I had a high in February of 268 then back to normal until it jumped to 274 this week.  I had scans 4 weeks ago that did not indicate anything to be concerned about.  My doctor reminded me that this a very non-specific test and as Cindy said can in…Read more

]]> 139cdfd548a149861649bcc61b22e726 Beth replied to the topic Many symptomatic brain mets - need hope in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/many-symptomatic-brain-mets-need-hope/#post-274470 Thu, 08 Apr 2021 15:24:27 -0400 Hi Jenny

I am not an expert on the various treatment options but I can share my experience with brain mets.  I was originally diagnosed in 2017 with a mole in my right thigh which was removed and everything was clear.  In January of 2020 we discovered the melanoma had returned and spread to my brain, lung and abdomen with multiple brain mets (7 I…Read more

]]> d022c0c95740d9bf03c4e223db10d4a8 Beth replied to the topic Quality of life on Braftovi / Mektovi and I in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/quality-of-life-on-braftovi-mektovi-and-i/#post-274459 Tue, 06 Apr 2021 16:57:41 -0400 Hi Daisy

I know you’ve already received several great responses but I thought I’d share mine as well since everyone’s is a little different.  After a craniotomy last year I did 3 rounds of ipi/nivo then 2 rounds of nivo.  My immunotherapy was stopped due to toxicity and we didn’t resume because everything had stabilized.  Fall of last year we sa…Read more

]]> b9eababc368ec9adf1c2a3db7629cb93 Beth became a registered member https://forum.melanoma.org/activity/p/1362/ Tue, 26 Jan 2021 15:23:18 -0500 0