https://forum.melanoma.org/user/anni/activity/ Activity feed for Anni. Thu, 23 Apr 2026 08:47:15 -0400 https://buddypress.org/?v= en-US 30 hourly 2 3e3e0ee18a5903e0d2df6a7c99a98274 https://forum.melanoma.org/forums/topic/asco-2021-leptomemingeal-disease/#post-276914 Tue, 28 Jun 2022 13:53:30 -0400 Thank you again Celeste, I will seek more information.

]]> 7534fa461fb50ad0b4dd9b6c0b73db8b https://forum.melanoma.org/forums/topic/asco-2021-leptomemingeal-disease/#post-276909 Mon, 27 Jun 2022 13:50:49 -0400 Hello Celeste, just reading some of what you have posted on leptomeningeal disease, my sister has it now and I am desperately looking around to see what may be available to her if anything, she stopped nivo in March and developed severe colitis, resolved with infliximab, but there seems to have been rapid progression in the brain with…Read more

]]> d74951562d80cd58f40421dd01e51c20 https://forum.melanoma.org/forums/topic/advice-on-genomic-testing-and-til/#post-274659 Thu, 06 May 2021 14:27:38 -0400 Celeste , once again, thank you. I will get in touch with them now. I appreciate your help so much.

]]> cd908771e4597cd7ed54dbaaed3fed1b https://forum.melanoma.org/forums/topic/advice-on-genomic-testing-and-til/ Sun, 02 May 2021 13:17:45 -0400 Good afternoon, thanks in advance for any help. Some of you may remember my sister’s story. Diagnosed 8/2018 , no primary but spread to brain and fibulas. Brain met removed 8/2018, some had to be left due to position. Tested Braf positive, started on Dafrabanib and Trametenib, with some success, Feb2020 some activity at site of brain met, given s…Read more

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