Melanoma Research Foundation | Stefan Makhoul | Activity https://forum.melanoma.org/user/stefanmakhoul8/activity/ Activity feed for Stefan Makhoul. Mon, 20 Apr 2026 16:47:00 -0400 https://buddypress.org/?v= en-US 30 hourly 2 e2259bdefe752f59de9ab7af366c3e31 Stefan Makhoul replied to the topic dabrafenib and trametinib in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/dabrafenib-and-trametinib-4/#post-276034 Sat, 27 Nov 2021 08:37:03 -0500 Thank you so much Celeste, I see you on this forum responding to people on this platform all the time and you’re a real beacon of hope. My mum has just under three treatments with ipi and nuvo, she was having awful back pain which we thought was a consequence of the therapy but turns out it was a new tumour. When she went into the scan they f…Read more

]]> 0a660f94c3be0a52143ca561a330f554 Stefan Makhoul replied to the topic dabrafenib and trametinib in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/dabrafenib-and-trametinib-4/#post-276033 Sat, 27 Nov 2021 08:28:54 -0500 Wish you all the best, if you don’t mind me asking, how many tumour sites you have? Also how long have you been on the combo for now? It’s so nerve racking, everybody is touting immunotherapy and I’m beyond disappointed it didn’t work for her. Once again wish you all the best.

]]> 603e224ee0b49472a3bd0d7b68505f60 Stefan Makhoul started the topic dabrafenib and trametinib in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/dabrafenib-and-trametinib-4/ Fri, 26 Nov 2021 16:52:46 -0500 My mum was diagnosed with stage IV melanoma, and she has growths on her lung, kidney, hip and on the outside of her spine. She’s BRAF positive and went on a combo of nivulomab and ipilumunab. After 3 months of treatment, she’s been scanned and she has new growths and a new legion. Our oncologist is now moving to targeted therapy. Does anybody hav…Read more

]]> 211c3ac8b29f0008c8b0f489a3458074 Stefan Makhoul started the topic Potential Brain mets - terrified in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/potential-brain-mets-terrified/ Mon, 06 Sep 2021 10:52:31 -0400 Hi, my mum is currently a metastatic melanoma patient and has just recently been diagnosed. She had melanoma on her skin that was removed about 10 years ago with no lymph nodes testing positive, however its come back now. About three months ago, she had awful leg pain and a growing tumour, after it was removed it was discovered that she had…Read more

]]> 0b84983c1d629e0b1c905561824da06f Stefan Makhoul replied to the topic Newly Stage IV - scared in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/newly-stage-iv-scared/#post-275462 Tue, 10 Aug 2021 00:20:51 -0400 Thank you so much for your response, it’s much appreciated! That post with all the treatment options is massively helpful, however this is slightly complicated by her hyperactive thyroid, she’s currently on medication which deals with that quite effectively, but do you think this could prevent her from having some immunotherapies?

Once again tha…Read more

]]> 4dd26bac3b6d95933b17a4051abb17b1 Stefan Makhoul replied to the topic Living with melanoma in the forum Caregiver Community https://forum.melanoma.org/forums/topic/living-with-melanoma-2/#post-275460 Mon, 09 Aug 2021 23:56:41 -0400 Hi, I’m going through a similar thing. My mum has just recently been diagnosed with stage IV melanoma, with mets to her bone, lung and potentially other parts of her bod. I think I’m still going through a process of grief, and mourning our old cancer-free life, there seems something cosmically unfair about me at 17 having to worry about the dea…Read more

]]> 7c319e031917ea41083a2a98752cfef2 Stefan Makhoul started the topic Newly Stage IV - scared in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/newly-stage-iv-scared/ Mon, 09 Aug 2021 23:40:09 -0400 Hi, this is my first time posting to this board and it feels comfortable to find a community going through a similar thing. About three months ago my mum had a growing lump on her leg which doctors originally thought was bone cancer, after a biopsy it turns out that it’s melanoma, and that it’s also spread to the lungs and potentially other sit…Read more

]]> 452e3f9b531e31c447d5498a0f6a66e6 Stefan Makhoul became a registered member https://forum.melanoma.org/activity/p/6668/ Mon, 09 Aug 2021 23:26:37 -0400 0