Melanoma Research Foundation | sandyd77 | Activity https://forum.melanoma.org/user/sandyd77/activity/ Activity feed for sandyd77. Tue, 21 Apr 2026 21:30:29 -0400 https://buddypress.org/?v= en-US 30 hourly 2 b17c8bae78b6baa5aae09d21e5c5e1f6 sandyd77 replied to the topic Treatment for Brain Mets - Need some shared experiences please in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/treatment-for-brain-mets-need-some-shared-experiences-please/#post-274970 Mon, 14 Jun 2021 01:35:12 -0400 Hello All,

I have not posted since my husband completed his whole brain radiation treatments for brain mets in early March.  He weathered the treatments well but he started a significant decline a few weeks after treatment completion with extreme fatigue and loss of appetite.  We followed up with a biopsy of the liver lesion which had turned up w…Read more

]]> d4376dd6561c5fff9bc1b529c4b3580f sandyd77 replied to the topic Quality of life on Braftovi / Mektovi and I in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/quality-of-life-on-braftovi-mektovi-and-i/#post-274434 Wed, 31 Mar 2021 01:44:12 -0400 Hello,

My husband is Stage 4 and has been on Braf/Mek for a year.  He was switched to targeted after 10 months of Opdivo provided only a mixed response and mets in his lungs and the original site on his back started to increase and grow.  He had a complete response on Braf/Mek except for a small met on his liver which has just started to i…Read more

]]> dbdc8d8990311bd3f590f1456e173bc9 sandyd77 replied to the topic Treatment for Brain Mets - Need some shared experiences please in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/treatment-for-brain-mets-need-some-shared-experiences-please/#post-274356 Sat, 13 Mar 2021 03:21:39 -0500 Hello all,

Just wanted to provide an update on my husband’s brain mets.  He has completed the prescribed 10 whole brain radiation treatments with minimal side effects.  He has also successfully tapered off dexamethasone.  His hair is just starting to come out and other than a tender scalp, he is doing OK.  We have blood work including LDH lev…Read more

]]> faa9fdc3b8fee4e2eaa571de807a375a sandyd77 replied to the topic Treatment for Brain Mets - Need some shared experiences please in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/treatment-for-brain-mets-need-some-shared-experiences-please/#post-274271 Mon, 22 Feb 2021 18:07:49 -0500 Ann,

Thanks so much for the information you shared about your husband’s treatments.  It helps SO MUCH much to hear about others who have traveled this path.    He is remaining positive about this and we are staying hopeful.  First of 10 treatments is tomorrow.  I hope your husband is doing well and you are as well!

Best,

Sandy

 

]]> 078edbaf215ba173cab01a280a2aa6c2 sandyd77 replied to the topic Treatment for Brain Mets - Need some shared experiences please in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/treatment-for-brain-mets-need-some-shared-experiences-please/#post-274259 Sat, 20 Feb 2021 01:59:02 -0500 Thanks for sharing your experience.  It helps.  Glad you are doing well.

 

Sandy D

]]> d5251a0d428a483d69d9136a281e5e9c sandyd77 replied to the topic Treatment for Brain Mets - Need some shared experiences please in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/treatment-for-brain-mets-need-some-shared-experiences-please/#post-274232 Tue, 16 Feb 2021 01:45:51 -0500 Thanks so much for your response – our appointment is tomorrow.  We have now seen the MRI report and there are multiple mets so your situation does sound similar.  It is good to hear from someone going through it.  I hope all goes well for you and also for us!

 

Sandy D

]]> 2eeb5fd4f759703ae775b722fa84544d sandyd77 replied to the topic Treatment for Brain Mets - Need some shared experiences please in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/treatment-for-brain-mets-need-some-shared-experiences-please/#post-274218 Fri, 12 Feb 2021 20:31:20 -0500 Ed,

Thanks so much for taking the time to respond to me and for the information you have provided.  It was very informative.

You and Celeste have been so helpful and I really appreciate it.

 

Best,

Sandy D

]]> 57844367029705d642512026a5b0d7b4 sandyd77 replied to the topic Treatment for Brain Mets - Need some shared experiences please in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/treatment-for-brain-mets-need-some-shared-experiences-please/#post-274217 Fri, 12 Feb 2021 20:28:23 -0500 Celeste – thank you so much for all of the information you have provided.  It is so very helpful and I have shared it with my husband.  I have learned along the way on this journey being informed is the best ally.  We feel a bit more hopeful after reading your response and the information, although we do realize everyone’s case is di…Read more

]]> 09a40feb40df03d5fab36dbb3f93bd73 sandyd77 started the topic Treatment for Brain Mets - Need some shared experiences please in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/treatment-for-brain-mets-need-some-shared-experiences-please/ Thu, 11 Feb 2021 19:29:47 -0500 Hi – I have been a member of the forum for some time now – my husband has had melanoma since 2018 which is at stage 4.  A brief history:

  • Initial melanoma was on back and required wide excision surgery in March of 2018 which was successful for the most part.  This was performed around the same time he had an UNRELATED right lung lobe removed d…

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