Melanoma Research Foundation | Rocco | Activity https://forum.melanoma.org/user/rocco/activity/ Activity feed for Rocco. Thu, 23 Apr 2026 12:44:56 -0400 https://buddypress.org/?v= en-US 30 hourly 2 ef11272a77bd366b9c7586c6c98b7d38 Rocco's profile was updated https://forum.melanoma.org/activity/p/130051/ Fri, 31 Jan 2025 01:12:47 -0500 0 e64261a351a39d9f195e9c4b19f738a7 Rocco replied to the topic We Lost a Marvelous Friend in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/we-lost-a-marvelous-friend/#post-280610 Fri, 31 Jan 2025 01:08:13 -0500 Would be interested in hearing more about the party for Dr. Allison. I’m alive today (NED since 2009) due to a Phase III trial (MDX-010) of Ipilimumab – before it went FDA approved as Yervoy.

]]> 07daf48974c64879f1cba7568c9eeb00 Rocco replied to the topic We Lost a Marvelous Friend in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/we-lost-a-marvelous-friend/#post-280609 Fri, 31 Jan 2025 01:05:16 -0500 Just reading this sad news. I’ve been away from the Patient Forum for quite a while.
As a Stage IV survivor since Aug 2005, I’d had email exchanges with Bubbles and often read her informative posts on the old mpip.org site and this one. She helped so many. Belated condolences to her family and all that knew her.

-Rocco
Stage IV in 2005, NED since 2009

]]> cc89769733fcbe5e010b27f3fa347106 Rocco replied to the topic Hair loss/thinning in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/hair-loss-thinning/#post-276222 Thu, 13 Jan 2022 16:18:32 -0500 Many years ago I was on the original Phase III trial for Ipilimumab (Yervoy) and lost about 1/3 of my hair.
Luckily, I had a thick head of hair, so it thinned out a lot but wasn’t too noticeable. It all grew back curly!
Hang in there!

]]> 118a45470034c4863150fe813f4cf175 Rocco replied to the topic NED for 2 Years in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/ned-for-2-years-2/#post-276221 Thu, 13 Jan 2022 16:14:24 -0500 Really great news, congratulations!

-Rocco

]]> 31060e5b03db6136a2f7f8ce51e3f98f Rocco replied to the topic Recurrent after 12 years, stage 4 in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/recurrent-after-12-years-stage-4/#post-276220 Thu, 13 Jan 2022 16:11:32 -0500 Mary –
I am so very sorry for your loss and all that you and your family has gone through.
May your loving memories of your Dad surround you and others during this difficult time.

-Rocco

]]> 39302fed034c3821bd6e4deb8c6ac799 Rocco replied to the topic Sun Protection and Outdoor life in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/sun-protection-and-outdoor-life/#post-275441 Fri, 06 Aug 2021 01:49:29 -0400 All great suggestions noted and I’ve used Coolibar and others mentioned.  Many more brands, style choices and price points than there were in years past.  You may want to check out Columbia, Eddie Bauer, Duluth Trading, LL Bean as they all make UPF 50 /sun-safe shirts (button up/collared) along with T-shirts.  Columbia – esp their outlet stores an…Read more

]]> ebb990735b050b24314c2c5c04b5f527 Rocco replied to the topic Who is NED for 5 or more years? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/who-is-ned-for-5-or-more-years/#post-275333 Sun, 11 Jul 2021 23:27:51 -0400 Glad to see Charlie S posts – it’s been a while.   I get survivor’s guilt now and then as well.

]]> c8de75cbc3537dce28d62e0466989aac Rocco replied to the topic Who is NED for 5 or more years? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/who-is-ned-for-5-or-more-years/#post-275271 Sat, 03 Jul 2021 05:07:34 -0400 Diagnosed Stage IV in Aug 2005.  NED since Feb 2009!  Hang in there!

]]> 6fff8d3e9239e11edf0d5f67ad68d00c Rocco replied to the topic Am I the only one, who finds the new forum software/ layout very annoying ? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/am-i-the-only-one-who-finds-the-new-forum-software-layout-very-annoying/#post-275050 Sun, 20 Jun 2021 01:34:43 -0400 No, you’re not alone.  The old format worked….ask a question, get replies.  MPIP.org was a lifeline for me after being diagnosed Stage IV in 2005…..used it daily to get answers, give answers and get hope.  A lot of people relied heavily on that bulletin board .  The profiles were extremely helpful to me – now they’re gone….and the new for…Read more

]]> 88afa22392dfa9ccfd891e3fba767724 Rocco replied to the topic question at to whether to keep a dermatologist appt in the forum Melanoma & Skin of Color https://forum.melanoma.org/forums/topic/question-at-to-whether-to-keep-a-dermatologist-appt/#post-274959 Sun, 13 Jun 2021 01:14:16 -0400 I would strongly suggest keeping your appointment.

]]> 611c9a697773733ce9747eab330b177a Rocco replied to the topic Hmmmm..... The NEW and IMPROVED MPIP! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/hmmmm-the-new-and-improved-mpip/#post-273670 Wed, 23 Dec 2020 02:50:24 -0500 Here’s hoping the histories come back – no way to recreate all the details since Aug 2005

Rocco

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