Melanoma Research Foundation | poppymac | Activity https://forum.melanoma.org/user/poppymac/activity/ Activity feed for poppymac. Tue, 21 Apr 2026 19:33:46 -0400 https://buddypress.org/?v= en-US 30 hourly 2 8814e793d9d42880937829346ab1c678 poppymac replied to the topic 4th infusion and no side effects in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/4th-infusion-and-no-side-effects/#post-278005 Thu, 29 Dec 2022 22:34:16 -0500 i had 4 infusions of pembro in late 2018
it was stopped because a braimn met showed up on scan
oncologists was quick to point out i had no side effects
i only one treatment of srs on brain met and nothing since
so not sure if pembro worked

]]> e70811263a0d22ec2f7b43536797adc4 poppymac started the topic 4 years NED in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/4-years-ned-2/ Thu, 22 Dec 2022 20:37:16 -0500 i had a single meastatic brain met in dec 2018
just one dose of srs and ned since

]]> 6bcbd23408374a6c76e4c3a9ce7f6dd9 poppymac replied to the topic Biopsy of lung lesion - negative - advice.... in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/biopsy-of-lung-lesion-negative-advice/#post-273871 Sat, 09 Jan 2021 19:10:50 -0500 hi,i’m from ireland too i doubt the oncologists would started ipi/nivo without further evidence as scans especially pet scan can be wrong i was i had melamoma in bowel and appendix 2 years ago and on further investigation it was in neither,imagine if i had been started on ipi/nivo straight away

 

]]> 544c1cc1d806e962d7070cfa2b420ddc poppymac replied to the topic Exercise and PET scan in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/exercise-and-pet-scan/#post-273799 Fri, 01 Jan 2021 18:47:52 -0500 hi,anything you find strenuous like running or lifting  if muscle or nerves are inflamed they might show uptake on pet scan,i was told i had melanoma in bowel and appendix it turned out to be false alarm

 

 

]]> a9c995a8d3af9274c007190ed68a3276 poppymac started the topic new immunotherapy drugs in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/new-immunotherapy-drugs/ Sun, 20 Dec 2020 20:37:22 -0500 it appears there has been little progress in last 10 years with improving immunotherapy drugs as the big hitters were either in trials or awaiting approval 10 or more years ago

not much new since

]]> e0a04a512c740a76a4d8923d1b507969 poppymac replied to the topic NED for 2 years in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/ned-for-2-years/#post-273440 Thu, 17 Dec 2020 16:23:52 -0500 hi,Celeste, thankyou for your as usual expert reply, i like many others here see you as an expert oncolgist on this forum

happy holidays to you and yours

fergal

]]> 9c559824b0c8a93bf7af9f143a5dcc61 poppymac started the topic NED for 2 years in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/ned-for-2-years/ Tue, 15 Dec 2020 16:39:43 -0500 hi all,not sure how to word this does being NED for 2 years reduced chances of reccurrence as i know i’m far from in the clear overall

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