Melanoma Research Foundation | Marilyn Nolan | Activity https://forum.melanoma.org/user/mel4/activity/ Activity feed for Marilyn Nolan. Fri, 01 May 2026 01:56:39 -0400 https://buddypress.org/?v= en-US 30 hourly 2 49a635cbdb5260f21f5291598a9fb767 Marilyn Nolan replied to the topic Fatigue & lack of appetite with Nivolumab (Opdivo) and Ipilimumab (Yervoy) in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/fatigue-lack-of-appetite-with-nivolumab-opdivo-and-ipilimumab-yervoy/#post-275654 Thu, 09 Sep 2021 22:34:19 -0400 Dear Christinad,

Thanks so much for all this very valuable information from your experience and for mentioning your friends had such good luck.

I appreciate this more than you will ever know.

I am so far doing OK, but it is only day 2.  I will try to keep posting to share my experience with others.

Wish you continued success with the single…Read more

]]> 0d146b738ba74243ca008c183c953ee5 Marilyn Nolan replied to the topic Fatigue & lack of appetite with Nivolumab (Opdivo) and Ipilimumab (Yervoy) in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/fatigue-lack-of-appetite-with-nivolumab-opdivo-and-ipilimumab-yervoy/#post-275625 Wed, 08 Sep 2021 10:25:19 -0400 Hi cristinad

Congratulations on getting through all 4 ipi nivo treatments.  I am embarking on this journey beginning this morning with my first combo treatment.  I have taken pembro alone and made it through 3 treatments with terrible colitis (diarrhea) which made it almost impossible for me to leave my house.  I am now on inflixumab to treat th…Read more

]]> cc778e621a563d6e19b30e5da96ffe69 Marilyn Nolan replied to the topic Who is NED for 5 or more years? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/who-is-ned-for-5-or-more-years/#post-275580 Tue, 31 Aug 2021 21:49:32 -0400 I am also stage 4 unknown primary and was wondering if you care to share the meds he took that worked and his experience with them.

i am about to start Yervoy/Opdivo combo since I have Mets to the spine and have just undergone back surgery and radiation to remove the tumor.  I also had neck lymph node surgery twice to remove malignant nodes.…Read more

]]> aefd8a05061f54adc4acd76279442b85 Marilyn Nolan replied to the topic Who is NED for 5 or more years? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/who-is-ned-for-5-or-more-years/#post-275403 Mon, 26 Jul 2021 22:25:39 -0400 Hi All,

I am stage 4 unknown primary and wonder if anyone on the forum would like to share their treatments which were successfull!

 

I have had 5-6 Keytruda infusions and then got a malignant tumor on my L5 lumbar spine.   Had to have surgery and now radiation.   Wondering what the next treatment will be.  Anyone with clear scans please sh…Read more

]]> 733a8f20fec0f288ecca6b32fb06013f Marilyn Nolan replied to the topic now stage 4 in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/now-stage-4/#post-275400 Mon, 26 Jul 2021 18:52:11 -0400 Hi Ellen,

I’m Marilyn, also a stage 4 melanoma patient of unknown primary origin.  I just recently was upgraded(downgraded?) from 3b to 4 after taking 5 -6 doses of Keytruda as adjuvant therapy.  I got some of the side effects; GI stuff was the worst and I had to add a biological ‘inflixumab’ to help with the colitis, now something spread to my L…Read more

]]> d61f20dc048ae57b1c36a57e68378237 Marilyn Nolan became a registered member https://forum.melanoma.org/activity/p/6269/ Mon, 26 Jul 2021 18:31:28 -0400 0