Melanoma Research Foundation | Lori0529 | Activity https://forum.melanoma.org/user/lori0529/activity/ Activity feed for Lori0529. Thu, 16 Apr 2026 13:37:51 -0400 https://buddypress.org/?v= en-US 30 hourly 2 b38aea74d7cfc20d2db6b4bafe2bea9f Lori0529 replied to the topic Greetings! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/greetings/#post-276748 Mon, 16 May 2022 22:34:57 -0400 That’s good news Scout!

Please reach out if you want to connect with someone a little further down the road.

]]> 5e618d83fcad417a2e174c3cba9eb5af Lori0529 replied to the topic Greetings! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/greetings/#post-276733 Fri, 13 May 2022 16:35:18 -0400 Hello Scout

Similar story.
Right Leg/Right Groin

As Celeste always informs, treatment has NEVER been better.

Are you seeing a Melanoma specialist??
They’ll have the absolute best treatment recommendations.

You’ll likely face a combination of treatments.
Neo Adjuvant (before any surgery)
Possible Surgery
Adjuvant (after any surgery)

My 2020…Read more

]]> 2f773159f2a37be795915fa3bf63d36e Lori0529 replied to the topic Clinical Trial for BRAF+ in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/clinical-trial-for-braf/#post-276344 Fri, 11 Feb 2022 14:46:45 -0500 MM-

All of it can be pretty overwhelming at times — I’ve found the “one day at a time” mindset to be helpful.

Started the 6-month trial in July and as hard as some of the days (particularly nights) were —- suddenly it was December, the last dose, and time to schedule surgery.

Surgery and recovery often better than I imagine too.

Faith,…Read more

]]> fc95e50560401814e0e77173b9511439 Lori0529's profile was updated https://forum.melanoma.org/activity/p/13604/ Thu, 10 Feb 2022 15:13:12 -0500 0 091e798d8c9f260a7bba3880883708ce Lori0529 replied to the topic Clinical Trial for BRAF+ in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/clinical-trial-for-braf/#post-276325 Thu, 10 Feb 2022 15:06:57 -0500 Hello MM

I think I may be in a similar (or same) clinical trial at Moffitt.

My history:

2006 — Melanoma in situ lower right leg
2015 — Recurred in right upper thigh — needed Wide Excision — Stage 2B
2020 — Surveillance CT scan revealed swollen groin lymph node — confirmed as Melanoma
Immunotherapy followed by Superficial Inguinal…Read more

]]> 6bc416c7bc43a66a77d1da22e6b04d73 Lori0529 replied to the topic Arthritis in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/arthritis/#post-275030 Thu, 17 Jun 2021 20:51:06 -0400 Hi Trent

I had my last round of immunotherapy in April of 2020

— had pretty severe joint pain — a prednisone taper helps, but it’s also my understanding that a steroid like this works against the immunotherapy effectiveness.

In January and February of 2021 I tapered my prednisone dosage and stayed on 5 mg of prednisone daily and it really…Read more

]]> 69da31e48cc4405a3a667d693a50e882 Lori0529 started the topic Adrenal Node Growing in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/adrenal-node-growing/ Thu, 17 Jun 2021 16:03:00 -0400 Received scan results yesterday and was informed an Adrenal node is growing and needs to be evaluated by the review board.

Does anyone have experience with diagnosis and treatment of melanoma that has spread to the Adrenal gland?

Thanks!

History below:

2008 Melanoma in situ Stage 0 (small dark spot lower right leg)

2015 Melanoma Stage 2B…Read more

]]> 7e6446fcd4560d7311f7bbc8e2a2b50c Lori0529's profile was updated https://forum.melanoma.org/activity/p/4844/ Thu, 17 Jun 2021 15:58:09 -0400 0