Melanoma Research Foundation | lkb | Activity https://forum.melanoma.org/user/lkb/activity/ Activity feed for lkb. Fri, 06 Mar 2026 11:28:23 -0500 https://buddypress.org/?v= en-US 30 hourly 2 cb1b8d7ae7f26bda6d3aac592b48e038 lkb replied to the topic Gamma knife before or after craniotomy? Radiation seeds? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/gamma-knife-before-or-after-craniotomy-radiation-seeds/#post-280497 Wed, 02 Oct 2024 03:09:49 -0400 Thank you, JudiAU. I’m hoping that if I have the craniotomy, the radiation will be a simple follow-up. The surgeon said the radiation coming from the outside was less risky than implanting “seeds” during the surgery.Yes, they do have a menacing sound to them, though I initially liked the idea of avoiding one more separate procedure.

]]> 66735372ba5e39c1033a29db72e011ed lkb started the topic Gamma knife before or after craniotomy? Radiation seeds? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/gamma-knife-before-or-after-craniotomy-radiation-seeds/ Mon, 30 Sep 2024 04:09:56 -0400 My neurosurgeon recommends surgical removal of a brain met plus (not instead of) gamma knife. He also mentioned a pre-op gamma knife clinical trial, but I’m guessing this would distort the diagnostic offering of surgery (measuring tumor v. ipi-nivo treatment effects). If post-op, would gamma knife impair the incision healing? He also mentioned “…Read more

]]> 9249d45017a6d4a34f5656a7df0e2cd9 lkb replied to the topic buzzy legs and twitchy feet in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/buzzy-legs-and-twitchy-feet/#post-276602 Thu, 14 Apr 2022 01:52:55 -0400 Thank you, Stevek. I’m also in the extensive vitiligo club and agree that not much seems to be known about immunotherapy beyond “We see cancer patients with peripheral neuropathy.” Thank you for the walking tip. When the time is right, I dread/look forward to going a year between scans.

]]> 3d52a06be40609cc7569bd73ec20fe57 lkb replied to the topic buzzy legs and twitchy feet in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/buzzy-legs-and-twitchy-feet/#post-276593 Wed, 13 Apr 2022 02:36:06 -0400 Thank you, Ed!

]]> 7f4bba61ff8eb0bbdf433fec286fb1d7 lkb replied to the topic buzzy legs and twitchy feet in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/buzzy-legs-and-twitchy-feet/#post-276591 Tue, 12 Apr 2022 15:54:33 -0400 Thank you, Steve, for your reply. Hooray for NED and sorry to learn of the diabetes. You say you’ve never had glucose problems; have your glucose levels registered as normal throughout? Mine have, which has made me think it’s not diabetes. GP has ordered A1C test. Could you please tell me how exercise helps–what kind, how much works for you? Thanks!

]]> b37efa4a8667d3994d62a693ea9f6bc5 lkb started the topic buzzy legs and twitchy feet in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/buzzy-legs-and-twitchy-feet/ Mon, 11 Apr 2022 20:22:50 -0400 Hello all,

I’ve been NED and off treatment since August 2020 and count this blessing every day. During treatment (Pisces trial with Pembro infusions and IL12 injections, 17 months), I developed intermittent tingling in my legs and feet, worst at night. Not diabetic. Has anyone else had/learned about this as a potential side/after effect of…Read more

]]> 047e5acee29e699b0f55a22a0c0a5239 lkb replied to the topic Who is NED for 5 or more years? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/who-is-ned-for-5-or-more-years/#post-275674 Tue, 14 Sep 2021 04:51:42 -0400 Love this thread! Thanks for initiating (sing123) and thanks for posting, five-year NEDers.

 

]]> 6f22549302e954c3e56bb42fdcf19fa9 lkb replied to the topic Still NED + Covid vaccinated in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/still-ned-covid-vaccinated/#post-274104 Tue, 02 Feb 2021 04:38:40 -0500 Congratulations, Jenn, O fellow San Franciscan! I’m glad to know you’re still NED and also vaccinated. Like Judi, I welcome NED sightings–very encouraging. Had my 3-month scans today and am in that delightful overnight period of waiting for results. Not thinking about it. Not at all. Nope, not me. What scans? Sigh. Sending all best wishes.

]]> e917b8fe1567668e8f2b51038dadcba0 lkb replied to the topic Melanoma Mike in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/melanoma-mike-8/#post-274067 Thu, 28 Jan 2021 03:53:48 -0500 Thank you, Tex, for letting us know. Thank you, Mike, for keeping us close. Thank you, Wife of Mike, for giving us the opportunity to rally around him; it was good medicine for all.

 

]]> f18ef9ba1aeb44909a58eb4a1a57a182 lkb replied to the topic COVID VACCINE & IMMUNOTHERAPY in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/covid-vaccine-immunotherapy/#post-273890 Tue, 12 Jan 2021 20:48:28 -0500 Stopped Pembro last June, had surgery in August 2020 and have been NED for three months. My oncology team recommends getting the vaccine.

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