Melanoma Research Foundation | Jenny | Activity https://forum.melanoma.org/user/liljen/activity/ Activity feed for Jenny. Fri, 01 May 2026 01:56:05 -0400 https://buddypress.org/?v= en-US 30 hourly 2 3de38690d7d7640de245b02cde9f46a5 Jenny replied to the topic Are we out of options? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/are-we-out-of-options/#post-274709 Sat, 15 May 2021 13:28:54 -0400 My sweet, wonderfull husband passed away last night.

I can’t understand how it could go so fast. He was only stage 4 for 5 months…

I just wish that we would have hade some more time.

]]> 93a62a899b934a553e3e8ca2d734a9cc Jenny replied to the topic Are we out of options? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/are-we-out-of-options/#post-274652 Wed, 05 May 2021 11:56:29 -0400 Thank you all for your responses. Melanie, thank you for sharing your friends story. I’m glad she responded to chemo. I hope my husband will do as well. He has had the first round of temodar and for the next cycle, they will add carboplatin as well.
<p style=”text-align: left;”>We spoke to his oncologist again today. My husband had an MRI scan d…Read more

]]> 7829d10c492dc803e886697a694a5855 Jenny replied to the topic Are we out of options? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/are-we-out-of-options/#post-274521 Fri, 16 Apr 2021 13:17:24 -0400 Thank you, Celeste, I will look at those trials, and see if they can accept him.

Jenny

]]> 55489bfdb3d219a6808655cacd101212 Jenny started the topic Are we out of options? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/are-we-out-of-options/ Fri, 16 Apr 2021 11:25:45 -0400 My husband have melanoma that has spread to his brain. He has many mets, tog many to treat according to his oncologist. My husband was offered Temozolomid.
He has tried immunotherapy, first pd-1, then ipi-nivo combo. He had a partial response, but could only have two combo treatments due to liver toxisity.
They don’t offer radiation since there a…Read more

]]> 9f7c1695bb39df5426f9decf53da9d53 Jenny started the topic Second opinion in the US if you live in other country? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/second-opinion-in-the-us-if-you-live-in-other-country/ Tue, 13 Apr 2021 15:01:13 -0400 Hi!

Do you know of it is possible to get a second opinion from one of the melanoma specialist if you live in another country? If so, who is the most exepeienced when it comes to brain mets?

My husband was recently diagnosed with several brain mets, and I am worried that he will not get the best treatment i my country.

]]> c1d371b9a277e304c27cb80affd51ace Jenny replied to the topic Many symptomatic brain mets - need hope in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/many-symptomatic-brain-mets-need-hope/#post-274492 Mon, 12 Apr 2021 08:06:08 -0400 Hi Juan,

He only had one brain scan before, six monts ago. That one was clear. I beat myself up about not asking for a new brain scan earlier, but I thougt i could trust his onc.

It is good to hear that you had success with treating that many brain mets with srs. I hope that my husband will get srs too, and that he will be able to go back to the…Read more

]]> 97a09bd078875b74df243e5d86b6dd9e Jenny replied to the topic Many symptomatic brain mets - need hope in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/many-symptomatic-brain-mets-need-hope/#post-274484 Fri, 09 Apr 2021 21:31:41 -0400 Hi Ted and Beth!

Thank you for your kind words!
I think that my husband doesn’t have the BRAF mutation, but we will ask about it when we meet his oncologist next week.

His oncologist is a melanoma specialist, so I feel that we can trust him. We might get a second opinion though, if we are the least uncertain about the sugested treatment.

 

Jenny

]]> bd88f9a1f71bfabd961cf00560f2aa6f Jenny started the topic Many symptomatic brain mets - need hope in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/many-symptomatic-brain-mets-need-hope/ Thu, 08 Apr 2021 08:00:22 -0400 Hi!

I have been lurking this forum for months now, and feel that i need to post and ask for advice.

My husbond is stage 4. We just learned that he has many brain mets (don’t now exact number). He is symptomatic, with blurred vision on one eye and has difficuly moving his  legs and walking. I don’t now what his next treatment will be, but I am w…Read more

]]> b3481cbc09975d4f773ceb018900293d Jenny became a registered member https://forum.melanoma.org/activity/p/3023/ Thu, 08 Apr 2021 07:15:49 -0400 0