Melanoma Research Foundation | Grace | Activity https://forum.melanoma.org/user/gracesd/activity/ Activity feed for Grace. Mon, 16 Mar 2026 11:21:15 -0400 https://buddypress.org/?v= en-US 30 hourly 2 7dfdfa7af6dd762366efbd746794599d Grace replied to the topic Update and Question in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/update-and-question-4/#post-276403 Sat, 26 Feb 2022 01:28:54 -0500 Thank you for the encouragement! My oncologist has never once measured my LDH levels and I have not asked about it. I hope your pain decreases soon!

]]> 6dbcb002c6abcd3a7b20b525eaee1d02 Grace started the topic Update and Question in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/update-and-question-4/ Mon, 21 Feb 2022 18:43:41 -0500 Hi All,
I posted several months ago… I am 34 with high tumor burden. Started on 2 rounds of Ipi/Nivo, then 8 weeks of BRAF/MEK inhibitors and then back to
2 more rounds of Ipi/Nivo. I had a great response to BRAF/MEK and also a really good response switching back to Ipi/Nivo. In mid-December I had scans (8 weeks after the switch back to…Read more

]]> 785d798517be3264e084a4bb7ed5c710 Grace replied to the topic So anxious over imminent scans and immunotherapy failure !! in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/so-anxious-over-imminent-scans-and-immunotherapy-failure/#post-276209 Tue, 11 Jan 2022 03:33:59 -0500 I have had relatively mild side effects from my immunotherapy treatments (4 doses Ipi/Nivo and now on the maintenance dose of Nivo), but I am responding really well! My main side effects are itchy skin, hair loss and oral mucositis, but not severe enough to need steroids. I also had a lot of anxiety about whether I would respond, so I understand…Read more

]]> da5ad94fd5e4c469e5fe9025c074b2ea Grace replied to the topic Hair loss/thinning in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/hair-loss-thinning/#post-276153 Wed, 29 Dec 2021 23:23:29 -0500 I have had hair loss for the last 5.5 months since I started Ipi/Nivo, however, I also paused Ipi/Nivo for 8 weeks while I went on BRAF/MEK inhibitors. So hard to know if my hair loss is caused more by the inhibitors, immunotherapy, or both. After 4 rounds of Ipi/Nivo and the 8 weeks on inhibitors in between, I recently switched to the maintenance…Read more

]]> 5177bcc5cd2fea662a56724d215ceed6 Grace replied to the topic 35 Year Old with Stage IV Melanoma in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/35-year-old-with-stage-iv-melanoma/#post-276133 Wed, 22 Dec 2021 18:21:49 -0500 Hi Grace! Thank you so much for your reply! I am so sorry to hear about your diagnosis and I hope you are getting some relief from the radiation. I would love to connect and hear more of your experience. I find this platform a little hard to navigate (is there a way to direct message?), so let me know if you would like to exchange emails instead.

-Grace

]]> 814198867dbbb25ab3c301f277b48dc1 Grace replied to the topic 35 Year Old with Stage IV Melanoma in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/35-year-old-with-stage-iv-melanoma/#post-275953 Tue, 09 Nov 2021 04:28:10 -0500 Thank you so much for the encouragement 🙂

]]> d1680e542d506fb44cad5de2a59b9c2d Grace's profile was updated https://forum.melanoma.org/activity/p/9670/ Sun, 07 Nov 2021 19:55:12 -0500 0 adbcdc7ffc3174c7f7a9142ddf450787 Grace started the topic 35 Year Old with Stage IV Melanoma in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/35-year-old-with-stage-iv-melanoma/ Sun, 07 Nov 2021 19:54:10 -0500 Hi All,

I am a 35 year-old from San Diego and I was diagnosed with stage IV melanoma with tumors in my lungs, liver, adrenal gland, pancreas, kidney, bone and brain in July of 2021. By the time of my diagnosis I was already quite symptomatic (not only do I have tumors in so many locations, but I also have a high tumor burden in my lungs and…Read more

]]> 49195b2e58415893250d97477196274e Grace became a registered member https://forum.melanoma.org/activity/p/9667/ Sun, 07 Nov 2021 19:51:36 -0500 0