Melanoma Research Foundation | Canadian melanoma wife | Activity https://forum.melanoma.org/user/canadian-melanoma-wife/activity/ Activity feed for Canadian melanoma wife. Sat, 04 Apr 2026 17:59:02 -0400 https://buddypress.org/?v= en-US 30 hourly 2 1855ffb4639ed1920880096a327ff613 Canadian melanoma wife's profile was updated https://forum.melanoma.org/activity/p/30669/ Sun, 02 Oct 2022 14:01:35 -0400 0 ba97e2c039b0425c7f75c3261dfbb786 Canadian melanoma wife replied to the topic 5 Year Nedaversary! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/5-year-nedaversary/#post-277356 Sun, 02 Oct 2022 13:47:44 -0400 Congratulations Bill!! My husband hits his 5 year NED from stage 4 and thought I would check in to the forum and leave a post as encouragement to others and I am delighted to see your threat at the top. I hope the shadow of melanoma grows ever weaker for you.

]]> 621982dfeeb0feb89fad8882e8599bff Canadian melanoma wife's profile was updated https://forum.melanoma.org/activity/p/7138/ Wed, 25 Aug 2021 19:32:59 -0400 0 621f47e7663a9f9e35f72e0fe9eeef7c Canadian melanoma wife replied to the topic Has anyone done the ipi/nivo combo for a 2nd time? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/has-anyone-done-the-ipi-nivo-combo-for-a-2nd-time/#post-275550 Wed, 25 Aug 2021 18:54:23 -0400 Thanks for your well wishes John and I am really hoping that there is enough of that magic sauce still in his veins to handle whatever it is that seems to be happening.

I’m very sorry to hear you lost your son, especially at such a hard time in your life. I can’t nor do I ever want to imagine how painful that much have been. Death often puts…Read more

]]> 5680a49e33634faec51f8102e1a098a0 Canadian melanoma wife replied to the topic Has anyone done the ipi/nivo combo for a 2nd time? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/has-anyone-done-the-ipi-nivo-combo-for-a-2nd-time/#post-275532 Mon, 23 Aug 2021 21:49:18 -0400 <p style=”text-align: left;”>Ironic that this is the exact question I came to ask as well. My husband had 4 ipi/Nivo combo treatments and then 4 just Nivo alongside WBR for brain mets in March 2018, had to stop because of multi system overload but he got to NED by Jan 2019. Aug 2021 he has a spot that is reactive in his neck but because of a prior…Read more

]]> a572f8c9164b50e0a977c2a9de1c5e51 Canadian melanoma wife's profile was updated https://forum.melanoma.org/activity/p/3657/ Tue, 11 May 2021 03:56:21 -0400 0 b98fb999cd4f1c81df34fe7233c3763a Canadian melanoma wife replied to the topic Scalp Melanoma in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/scalp-melanoma-3/#post-274682 Tue, 11 May 2021 03:09:13 -0400 Hey Will,

 

Happy to hear your surgery was successful and sorry to hear you were in pain afterwards.

 

I agree with JudiAU, head and neck are more prone to spread to the brain which is the really scary stuff. My husband had a wide excision like you have just had then 2 years later had to have a full neck dissection (removal of all the lymph…Read more

]]> 384dc4848141d4e62d1b3494adc11032 Canadian melanoma wife replied to the topic Meeting today to discuss planned treatments for brain mets in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/meeting-today-to-discuss-planned-treatments-for-brain-mets/#post-274115 Tue, 02 Feb 2021 19:12:43 -0500 Hey Rosiepup I know sometimes when it comes back you want to hit it with everything you got but that radiation is just bad stuff on the brain. My husband is NED for the last 2 two years but was fighting stage IV this last occurrence with Brain Mets. He wasn’t eligible for SRS and ended up having to have a couple whole brain radiation treatments.…Read more

]]> 06edf0d243b5c4ecb433fd0b696cadc5 Canadian melanoma wife replied to the topic 1.5 years since last ipi/nivo combo treatment new side effects? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/1-5-years-since-last-ipi-nivo-combo-treatment-new-side-effects/#post-273918 Sat, 16 Jan 2021 17:45:39 -0500 No new medications. In fact Chris takes no medication at all, essentially refuses any long term prescription now that the cancer has subsided. He is in rough shape and I almost wish he would consider a few meds but I guess I respect his courage to endure. The oncologist is sending him to see a general surgeon next week as well and a scope from…Read more

]]> e59fc138a5cd8581f9c5edf7f81fec2d Canadian melanoma wife replied to the topic 1.5 years since last ipi/nivo combo treatment new side effects? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/1-5-years-since-last-ipi-nivo-combo-treatment-new-side-effects/#post-273467 Thu, 17 Dec 2020 21:34:58 -0500 Sorry, to clarify Chris has scans every 3 months and alternates between a PET scan and a CT with additional MRI. His last routine scan was just 3 weeks ago. He did not receive a scan while in the ER as he just had one done. When the pain comes on it is very sudden he gets nauseated and throws up, and gets sweaty and it is not on one side or the…Read more

]]> c6f7ce530634adb9aca42174db5e5f29 Canadian melanoma wife changed their profile picture https://forum.melanoma.org/activity/p/55/ Wed, 16 Dec 2020 04:40:36 -0500 0 5aaaab9ee467fd3aaeb8067c0e8a6b83 Canadian melanoma wife started the topic 1.5 years since last ipi/nivo combo treatment new side effects? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/1-5-years-since-last-ipi-nivo-combo-treatment-new-side-effects/ Tue, 15 Dec 2020 17:08:54 -0500 Hi all! Just looking for any thoughts on a current situation. My husband received whole brain radiation and the ipi/nivo combo treatment x8 with the last infusion being August 2018. Since September of this year he has been experiencing some really terrible abdominal pain. Bad enough that he went to the hospital for the first time in ages…Read more

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