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I hope this note finds you well. In the midst of this very strange time, the MRF is trying to find ways to keep our community united, supported and educated. I’d like to share a few items we have in the works:
Because all of the April, May and June educational and fundraising events have been cancelled/postponed, we are offering many programs virtually. I know it’s not the same as being together in-person, but I hope it provides a bit of normalcy. First, we developed the #CancerHasNoCurve Resource Center, where new educational and support resources will be posted every Monday throughout the month of May (and possibly June). These offerings will be melanoma-specific, not COVID-specific.
COVID-19 and melanoma information can be found here, and we are planning to host a live webinar on navigating clinical trials during this time, as well as making other resources available.
Each Thursday during the month of May, we are hosting a Facebook Live session called “Ask a Dermatologist”. You can listen in via our Facebook page.
Last, but certainly not least……..in the coming months, we will be updating and overhauling MPIP! This will be a big project and likely won’t be implemented until the Fall, but I wanted to give you a heads up. Our hope is that the patient forum becomes easier to navigate, more user-friendly, profiles are easier to update, interactions between users (likes, hearts, virtual hugs, etc.) are implemented, those diagnosed with rare subtypes have a place to connect, and that, overall, the community grows and becomes stronger. If you have ideas, thoughts, comments or suggestions, please send them to me at [email protected]!
As always, please reach out if the MRF or I can be helpful to you.
The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.
The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.