- August 8, 2010 at 9:07 pm
Hi there , Sharyn who posts here regularly had WBR, she is likely off at the cabin so I will copy a post here.
If you would like to search go to the archived bulletin board on the left, it is a wealth of information. Best of luck to your wife, linda
Posted by Sharyn at 02:32 on Wed, May 19, 2010 [Show other posts by Sharyn]
In Reply to: Re: Amy B -Whole Brain Radiation and IL2 by Val posted at 03:29 on Tue, May 18, 2010
Well, Val and I didn't meet up as planned (Val I'll call you), but yes, I had WBR last November, followed immediately with Temodar. Side effects? None, except for mild nausea (took metacloprimide), and fatigue, but I'm not sure those were WBR effects or Temodar. No brain dementia at all. Whenever I have what I call a "brain fart" and blame it on the WBR, my kids laugh at me and say I was like that before the radiation, so they don't buy it. But I did lose my hair, and it's now grown out about an inch or so. My deciding factor to do WBR was when one of my Drs emailed me and told me his anesthesiologist colleague had mel brain mets 4 years ago, had WBR, and has been working full time ever since. The risk factors are there, yes, but they occur in such a low percentage of patients. Besides, with this disease, everything is a risk, isn't it?
If I were Amy, I wouldn't hesitate to do WBR. As for the rest of the plan, I can only say I'm keeping IL-2 as one of my back-up plans. BTW, the WBR got rid of a lot of 1mm spots I had, shrunk a 5mm tumor to less than 2mm, and kept another one stable. However, I've since sprouted 2 more new ones (3 mos after WBR), so I'm in Montreal now for Novalis SRS.
Give Amy my love and best wishes. Hang in there! She's a trouper!