- August 10, 2010 at 10:36 am
Thanks to all who – your support means a great deal to me and I do tell Will many people he has not met are thinking of him, praying for him, and giving good advice and ideas to help him. It does make him happy and encouraged.
Sometimes I just mourn all he's lost so far to melanoma and treatments, and I think that's what he has been doing as well. There are times it seems he's lost almost everything except his life, but then I remember that really, that's all that counts and the other things are not important in the long run. Will's situation is complicated. He's spent his entire life fighting to be independent and being in good health was a big aspect of that. He exercised carefully (often riding his bike or walking six or more miles a day), never eating "junk" food, never smoking, etc. Being put in a group home or some other sort of facility was always a very real threat, and Will worked so very hard to get his own job and develop his self-sufficiency skills, and move into his own condo. Now, he cannot work and has to rely on others for so much help – it does feel like melanoma has been particularly cruel in robbing him of these things. It's hard not to be angry!
But he's still fighting hard and wants very much to recover enough to take computer classes, be able to take the train downtown (to Chicago from the suburbs) again, that sort of thing. He's stll looking ahead and still has a purpose here. And that, I am sure, is what really counts.
Dr. Kaufman and the staff at Rush were very good and helpful last time we were there and were it not for this board, I would not have know that Kaufman had moved from NYC to Chicago, so again, thanks to you all!