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Re: This is all new to me!

Forums General Melanoma Community This is all new to me! Re: This is all new to me!


      sorry you have to join us here, I just recently joined too and I am new also at the Melanoma.  I was dianosed April of this year.  I am 39 female and I have been diagnosed with stage 3B with no primary found.  Mine landed in a lympe node in my groin area, they call it, I call it upper right thigh.  Anyway, I had the surgery to get it out and it was the size of an egg!   they went in right away and took all the lympe nodes around it out.  28 of them!  They all tested negative thank god.  I have been taking, the interferon shots.  Those are no fun, I completed 3 weeks at high dose at the cancer center then I had some eye problems from that, blurry vision, lights are real real bright, cloudy rooms so they stopped it.  I was off that for about a month and went back on them this past week for the low dose home self injections.  I praise anyone who took these and worked.  No way….I am stopping the low dose end of the month and going back to work.  I have been told by several specialists including my surgeon that 30 days at high dose is just as good as doing the whole year.  I am going to combine my low and high, add a week and call it good.  I know how you feel if being new and confused and everyone using all these abbreviations for things.  My life has totally changed since being dianosed.  But I am not going to let it rule my life.  I am going back to work and going to live everyday to the fullest and hope the "beast" stays away.  I won't have a scan until December and then I am sure I will worry again.  Until then, at least I did some of the interferon.  Good luck to you and keep us posted….Teresa in Indianapolis

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