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Re: roll call for leptomeningial mets – juist me & Kevin …

Forums Caregiver Community roll call for leptomeningial mets – juist me & Kevin from Atl? Re: roll call for leptomeningial mets – juist me & Kevin …

    Kevin from Atlanta

      Hello Amy,

      I got lucky. Although I have met along the spine, they have not entered the spinal fliud. 2 onc and the radiologist all thought it would have been in the spine due to the thick fluid surrounding the brain. I had 5 days of WBR. I just took treatment 3 of 4 today on Ipi. No serious side effects yet. i did get a intestional ct scan recently. More mets there and some have grown from 1 CM to 4 CM. I took morphine for several days really screwed up my up severe nausea and constipatiion. That is why I got the CT scan, I was afraid of blockage. Other than peeling on my feet and hands I really have not had a severe side effects from Ipi, which is bad. The more severe the side effcts from Ipi, it increases the chances you will be a responder.

      I am glad I did not have to do the Ommaya treatment, the Ipi is much easier. I still have a high chance of mets in the spine.


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