James from SydneyParticipant
- August 19, 2010 at 9:16 am
yes there is hope, There are always to sides to the Stats. you just might be on that good side. At one of our Support Group meetings i met a guy in his 40's who had recovered from Melanoma, he had, over a 4 year period Lymph node dissection, subq's removed a lung resection then Brain tumor removed followed by Whole Brain Radiation. The good bit is his last treatment finished in 1994!
I believe there is a trial that combines both Ippilimumab and chemo, many would suggest a 2nd or 3rd opinion which might offer you a different outlook or a plan if this treatment is not successful. Ask for your tumor sample to be tested for Braf, Ckit and Nras Mutations there are drugs targeted towards these if you are found to be positive.
What works for one person may not work for another that is the nature of this disease just keep searching until one works for you. You need to be in control, be a proactive participant in the management of your disease.