JenMParticipantWhen I read your email the first thing I thought was get a new doctor. You simply need both: honesty and hope from your medical team. And if u r lucky you will find compassion. I am currently stage 4 and going thru medical treatment but my surgeon oncologist calls me every 3 weeks or so just to see how I am doing. It’s not like I have surgery coming up…..he just calls to say how r u. I can’t tell u how much that means to me.
- August 19, 2010 at 3:28 pm
U do have hope…I don’t think there has been a time in melanoma history like right now with the drug ipi coming out and other promising drugs that they will probably combine with ipi. I’m sure others who have been on this board longer than me will agree. Although they have probably see other promising drugs come and go. Buy I truly believe we r on the cutting edge of some great treatments.
Keep posting…there r some great people here. I am only a recent stage 4…went to my left breast in the beginning of June…and while I was deciding on a clinical trial a brain mri found 3 lesions. So far the lesions r stable. I currently completed 3 cycles of Temodar, cisplatnium and vinblastine. I also take an oral chemotherapy called sorafenib/nexavar. I do have the Braf mutation and the sorafenib is one of the early braf inhibitors that did not get approved but has helped some. I get it off label, the drug is approved for liver and kidney cancer.
Anyway, I’m sorry to have gone and on…I know u wanted to hear from long term stage 4 patients. I’m not there yet but that is my goal!
Best of luck to you. Please keep in touch.