- August 1, 2010 at 1:57 am
I can offer a little bit of inof on temodar..started first dosage July 19th, I could have chosen dicarbazine at no cost due to medicare in Quebec, however, temodar is much easier on the system so with my husband’s retirement package I was able to go on it for 6 months at $4,000/month…90% being paid by his package we will soak up the rest. If this is unsuccessful next step will be the ‘ipi’ trial.
So far so good. After taking 4 pills a day for five days, I had few side effects although I did take an anti nausea pill Sandoz…first day was so easy thought I would not take the anti nausea pill…big mistake TAKE IT. Also I decided against the laxative and went to the cottage for the week…big regret..TAKE the laxative pill too that they should prescribe! The day after my 5-day treatment I had a fever of 102.5..went to bed with two Tylenol and lots of water and within 2 hours it was down. Right now a week later, I’m feeling quite fatigued, sleep a lot but am able to function..blood test on Tuesday, will see what’s happening. Temodar is certainly doable and is not as rough as interferon was by a long shot!! Thank goodness. Best wishes on your treatment. Val