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Re: Ipi Success Stories and/or Thoughts

Forums General Melanoma Community Ipi Success Stories and/or Thoughts Re: Ipi Success Stories and/or Thoughts


       Sharon, here is why I like the Ipi option.  

      1. Just as you said, it has been known to cross the blood brain barrier.

      2. Unlike the BRAF trials which tend to show immediate responses which are short lasting,(if you research it enough, you will see that there was a BRAF inhibitor called BAY something that never made it to approval because the overall survival didn’t really add up.  IPI has a durable response. IPI has also been a drug I always wanted to get a hold of, So far the only long term survivor I have seen w/the BRAF inhibitors is one person.  She posts here from time to time.  She was in the Bay trial.  Meanwhile a lot of my favorite people (Amy Busby for example) have not had the results I was hoping for.  I like you too, and if it were me, I would definitely go for IPI.  If it doesn’t work though, don’t lose hope, I survived without it.  Unfortunately in order to qualify for compassionate use, you need to have a tumor (at least when I was thinking about it).  Whichever you choose, God Bless and keep on fighting.


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