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Re: I am reading the boards but not understanding the …

Forums General Melanoma Community I am reading the boards but not understanding the abbreviations Re: I am reading the boards but not understanding the …

    Phil S

      I think we all understand and can relate to just how scary the melanoma diagnosis can be and that the waiting for test results and treatment options is the worst!!  When my husband was diagnosed with muscosal melanoma in Jan/Feb 2010, I immediately went onto general web sites that listed the poor prognosis of his particular muscosal (rectum) melanoma and I became very depressed and discouraged.  Then, my husband found the MRF Bulletin and now this is the only place I go for melanoma information.  We both read these bulletins daily and the stories and medical information have been so valuable to us, as we try to look ahead. 

      So the only advice I give anyone facing this fight, is to do what feels right for you at the moment, and just know that if you need a break from this Bulletin as you adjust to your new reality, always remember that this Bulletin will still be here when you are ready and wonderful  (and yes, sometimes scary and sad) information awaits.   It took us a few months after Phil's surgery to truly appreciate the stories of hope, strength, and courage from all the melanoma patients and family members that take the time to share their journey.  I now feel I am never alone.       God Bless!         Valerie (Phil's Wife)

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