The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Re: I am reading the boards but not understanding the …

Forums General Melanoma Community I am reading the boards but not understanding the abbreviations Re: I am reading the boards but not understanding the …

    Phil S
    Participant

      I think we all understand and can relate to just how scary the melanoma diagnosis can be and that the waiting for test results and treatment options is the worst!!  When my husband was diagnosed with muscosal melanoma in Jan/Feb 2010, I immediately went onto general web sites that listed the poor prognosis of his particular muscosal (rectum) melanoma and I became very depressed and discouraged.  Then, my husband found the MRF Bulletin and now this is the only place I go for melanoma information.  We both read these bulletins daily and the stories and medical information have been so valuable to us, as we try to look ahead. 

      So the only advice I give anyone facing this fight, is to do what feels right for you at the moment, and just know that if you need a break from this Bulletin as you adjust to your new reality, always remember that this Bulletin will still be here when you are ready and wonderful  (and yes, sometimes scary and sad) information awaits.   It took us a few months after Phil's surgery to truly appreciate the stories of hope, strength, and courage from all the melanoma patients and family members that take the time to share their journey.  I now feel I am never alone.       God Bless!         Valerie (Phil's Wife)

    About the MRF Patient Forum

    The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

    The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.