- August 17, 2010 at 3:42 am
So I thought i'd update you on our day with the doctors….
Turns out the chemo (dabarbazine) did not work. Big surprise :-( the bone lesions have all grown in size but only by about 15% in 2 months and no new sites, which i'm taking as positive.
Turns out the study they want to put him in is :http://clinicaltrials.gov/ct2/show/NCT01155453
And he will be the 4th person in the world to try this drug combo. We start on Sept 3rd. Fingers, toes and quite frankly everyhting else is crossed.
They going to radiate some of the lytic lesions to reduce the pain. Any one else had bone lesions radiated? Any side effects i should be expecting?
will keep you posted on results.
thanks for listening.