› Forums › Cutaneous Melanoma Community › Hoffman-La Roche BRAF inhibitor trial Participants › Re: Hoffman-La Roche BRAF inhibitor trial Participants
Shelly in SwitzerlandParticipant
- August 30, 2010 at 8:35 am
I started the same trial on June 14 and was randomized to the RO5185426. My first 5 days were a piece of cake and then I too broke out in a rash ALL over my body. I was extremely sensitive to the hot weather and to the sun. I could almost feel myslef blister from direct sunlight. By the end of the first week I had arthritis so bad in my hands, arms, feet and legs that my husband had to undress me. Walking was painful. During the first three weeks I also had fevers at the end of the day. Eventually it all subsided and now I deal with arthritic pain that changes locations in my body weekly. One day it might be in my hand that I can't even open due to pain or the next week my shins, crazy movement…
The good news is that after 6 weeks my tumors in the pluera were shrinking. I have stuck it out and I feel I can live with the aches and pains. (By the way, the rash went away completely after 2.5 weeks.)
I hope you can try it again.
Shelly in SW