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Re: Anyone enrolled in IPI/Temodar trial at MDA in Houston?

Forums General Melanoma Community Anyone enrolled in IPI/Temodar trial at MDA in Houston? Re: Anyone enrolled in IPI/Temodar trial at MDA in Houston?

    Jim in Denver
    Participant

      Hi Sue,

      I agree that MDA is an amazing place.  Dr. Hwu can communicate with your Doc at Emory if you give receptionist at the Melanoma Clinic his/her contact information, including email.  I am sure your Atlanta Doc will have heard of or even met Dr. Hwu since he is well known as both researcher and practitioner. Your concerns about potential copmplications are understandable, but you might consider giving yourself an extra day in Houston after treatment to reduce the chances of an immediate problem.  Your local Onc Doc is ther to help you with any issues that may arise when you are not in Houston, but you should communicate with Him/her about your treatment plan before starting at MDA (at least that is what I did).  Ipi is not associated with any respiratory issues that i am aware of, but you should discuss this with Dr. Hwu.  You will need to have weekly blood work on the trial, drawn either at Emory or a Quest Lab near you, then anaylzed and faxed to MDA.

      My side effects from my first treatnent have been minimal from both Ipi and Temador – mild headaches and mild constipation. That can change over time, however, so vigilance is required.  Hope that helps.

      Best Wishes,

      Jim in Denver

       

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