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Re: Anyone enrolled in IPI/Temodar trial at MDA in Houston?

Forums General Melanoma Community Anyone enrolled in IPI/Temodar trial at MDA in Houston? Re: Anyone enrolled in IPI/Temodar trial at MDA in Houston?

    Jim in Denver
    Participant

      Hi Sue,

      I am a patient of Dr. Wen Jen Hwu and began the Ipi/Temador trial two days ago.  I had the Ipi infusion on Tuesday, and have taken the Temador for 3 days now – at night, so I just took my 3rd dose.  Taking Zofran (an anit nausea drug that is prescribed as part of the trial) before the Temador is very effctive for me.  I have had no side effects (yet) from either Ipi or Temador, but I understand that can change over time.  So there may be more significant side effects in the future, but none so far.  Dave starts tomorrow, so you can ask later about any issues, although we both will post here.

      As for travel, I have flown on Southwest into Hobby so I don't have a long drive to the Medical Center area of Houston.  I live in Denver, so it is about a 2 hour flight for me.  There are many good hotel options in the area.  One tip is to call the hotel directly when booking and ask for a discount for being a patient at MD Anderson.  I did not know about that one until checking in at the Holiday Inn and the front desk person asked if I was a patient, then offered me a discount – very nice.  You can find rates for around $100 – 125, although also higher and lower.  I have made 2 trips to Houston so far – the first for 3 days and this week for 2 days.  I go back again in 3 weeks and will probably fly in and out the same day.  I will only get the Ipi infustion, and that takes 90 minutes, but thater is also another 60 minutes on saline solution afterwards.

      Hope that helps!  Best wishes……..

      Jim in Denver

       

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